ISRCTN11372270已完成未知
Patient and carer preference weights in spinal muscular atrophy: a discrete choice experiment (DCE) survey in five European countries
Roche (United States)0 个研究点目标入组 70 人开始时间: 2021年1月15日最近更新:
适应症
试验速览
- 阶段
- 未知
- 状态
- 已完成
- 发起方
- 入组人数
- 70
研究概览
简要总结
2021 Results article in https://doi.org/10.1007/s40273-021-01118-2 (added 18/07/2022)
研究设计
- 研究类型
- Observational
入排标准
- 性别
- All
入选标准
- •1. A patient self-reported or caregiver proxy-reported diagnosis of SMA Type II: age of onset between 7 and 18 months OR SMA Type III: age of onset 18+ months and 17 years
- •2. Non-ambulatory, defined as unable to walk more than ten steps without a form of assistance
- •3. Adult patients aged 18+ OR caregivers of patients aged <18 years
- •4. Residents of the Netherlands, Finland, Ireland, Portugal or Belgium
- •5. Willing and able to give their informed consent
排除标准
- •Does not meet inclusion criteria
研究者
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