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Communication Memory of Cancer Diagnosis Within the Pediatric Triangle

Active, not recruiting
Conditions
Memory
Interventions
Other: Communication memory
Registration Number
NCT04392908
Lead Sponsor
Meyer Children's Hospital IRCCS
Brief Summary

Present project aims to investigate memories related to a cancer communication diagnosis in pediatric oncology. It evaluates possible common elements and specificity between family and healthcare staff.

Detailed Description

Lots of scientific evidences have shown that autobiographical episodes' narrative has a beneficial effect on the elaboration of memories. Indeed, narrating is a way to order thoughts and moods, which are connected to particular episodes of one's life, in order to rework and relive them. Since the diagnosis, a relationship and an open and sincere dialogue between the various parts of the pediatric triangle can promote a process of adaptation to the experience of illness and an integrated biopsychosocial healing. The first aim of this study is to explore and analyze autobiographical memories of pediatric patients, parents and healthcare staff. Also, it aims to investigate possible common and discordant element between deposition.

Phases of the present study:

1. Sample recruitment and informed consent collection.

2. Diagnosis communication audio recording.

3. Communication of the autobiographical memory of the diagnosis audio recording of patients, parents, oncologist, nurse and psychologists involved, the day after the communication.

4. Questionnaire APAM administration for adult participants.

5. Audio Transcription and data coded. Data will be registered and operated by means of statistical software as SPSS (IBM) and T-Lab (Lancia, 2004).

6. Statistical processing: ANOVA and t of Student tests will be implemented in order to compare collected questionnaires. Narrative analysis will be implemented by means of textual analysis software.

Recruitment & Eligibility

Status
ACTIVE_NOT_RECRUITING
Sex
All
Target Recruitment
70
Inclusion Criteria

Not provided

Exclusion Criteria

Not provided

Study & Design

Study Type
OBSERVATIONAL
Study Design
Not specified
Arm && Interventions
GroupInterventionDescription
PatientsCommunication memoryPediatric patients from 12 to 17 with cancer diagnosis only taken by Meyer Children's Hospital prior consent. Knowledge of fluent Italian language is required
ParentsCommunication memoryParents of pediatric patients prior consent. Knowledge of fluent Italian language is required
Medical StaffCommunication memoryMedical staff including doctor, psychologist and nurse
Primary Outcome Measures
NameTimeMethod
Phenomenological characteristics of autobiographical memoryOne day after diagnosis

Self report questionnaire "Assessment of the Phenomenology of Autobiographical Memory - APAM"

Emotional characteristics of autobiographical memoryOne day after diagnosis

linguistic analysis by Linguistic Inquiry Word Count - LIWC; cluster analysis by T-Lab; Content analysis; coherence and narrative structure by High Point Anaysis.

Secondary Outcome Measures
NameTimeMethod

Trial Locations

Locations (1)

Meyer Children's Hospital

🇮🇹

Firenze, Italy

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