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Safety/Proof of Concept Study of Oral QLT091001 in Subjects With Leber Congenital Amaurosis (LCA) or Retinitis Pigmentosa (RP) Due to Retinal Pigment Epithelial 65 Protein (RPE65) or Lecithin:Retinol Acyltransferase (LRAT) Mutations

Phase 1
Completed
Conditions
LCA (Leber Congenital Amaurosis)
RP (Retinitis Pigmentosa)
Registration Number
NCT01014052
Lead Sponsor
QLT Inc.
Brief Summary

The purpose of this study is:

* to evaluate the safety of oral QLT091001

* to evaluate whether 7-day treatment with oral QLT091001 can improve visual function in subjects with LCA or RP due to RPE65 or LRAT mutations

* to evaluate duration of visual function improvement (if observed)

Detailed Description

Not available

Recruitment & Eligibility

Status
COMPLETED
Sex
All
Target Recruitment
32
Inclusion Criteria
  • Subjects diagnosed with LCA or RP (with a mutation in either RPE65 or LRAT)

    • Subjects with LCA must be 5-65 years of age
    • Subjects with RP must be 18-65 years of age
  • Subjects who have a "best-corrected" visual acuity of 3 letters or better (20/800 Snellen equivalent) or viable photoreceptors on OCT/FAF.

Exclusion Criteria
  • Subjects who are actively participating in an experimental therapy study or who have received experimental therapy within 60 days of Day 0.
  • Subjects with any clinically important abnormal physical finding at Screening.
  • Subjects who have taken any prescription or investigational oral retinoid medication (e.g., Accutane,® Soriatane®) within 6 months of Day 0 and subjects who did not tolerate their previous oral retinoid medication will be excluded regardless of the time of last exposure.
  • Subjects with a history of diabetes or chronic hyperlipidemia, hepatitis, pancreatitis, or cirrhosis.
  • Subjects who have taken any supplements containing ≥10,000 IU vitamin A within 60 days of screening

Study & Design

Study Type
INTERVENTIONAL
Study Design
SINGLE_GROUP
Primary Outcome Measures
NameTimeMethod
Visual Field12 months
Secondary Outcome Measures
NameTimeMethod
Vital signs, clinical laboratory tests, electrocardiogram (ECG), and adverse events12 months

Trial Locations

Locations (7)

Institute for Ophthalmic Research, University of Tubingen

🇩🇪

Tubingen, Germany

Montreal Children's Hospital, McGill University Health Centre

🇨🇦

Montreal, Quebec, Canada

Moorefield Eye Hospital

🇬🇧

London, United Kingdom

Wilmer Eye Institute (Johns Hopkins University)

🇺🇸

Baltimore, Maryland, United States

Scheie Eye Institute

🇺🇸

Philadelphia, Pennsylvania, United States

The Chicago Lighthouse for People Who Are Blind or Visually Impaired (The Pangere Center For Inherited Retinal Diseases)

🇺🇸

Chicago, Illinois, United States

The Rotterdam Eye Hospital

🇳🇱

Rotterdam, Netherlands

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