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临床试验/NCT01610843
NCT01610843已完成不适用

Worldwide Sarcoidosis Research Study

Alicia Gerke1 个研究点 分布在 1 个国家目标入组 2,200 人开始时间: 2011年12月1日最近更新:
适应症

试验速览

阶段
不适用
状态
已完成
发起方
Alicia Gerke
入组人数
2,200
试验地点
1
主要终点
Define and characterize sarcoidosis phenotypes and methods of care

研究概览

简要总结

The aim of this study is to collect information about the clinical course and characteristics of sarcoidosis patients around the world through web-based surveys. Recruitment is directed at and driven by patients in the sarcoidosis community. This will allow the the investigators to study sarcoidosis patients across all demographic, geographic, and socioeconomic boundaries, not just patients seen at large research centers. The investigators believe this study can give investigators a broader and less biased view of sarcoidosis. The investigators would also like to collect genetic samples on this population to assess genetic variance in different phenotypes.

The information for the study would be provided through a web based survey system that can be accessed by patients or physicians of patients from any computer with Internet access. This system would collect clinical information in sufficient detail so that the phenotype of individual patients can be evaluated. Upon agreeing to participate in further research studies through the website, subjects will also have the opportunity to provide a DNA sample.

研究设计

研究类型
Observational
观察模型
Cohort
时间视角
Prospective

入排标准

年龄范围
18 Years 至 —(Adult, Older Adult)
性别
All
接受健康志愿者

入选标准

  • Diagnosis of Sarcoidosis
  • Access to a computer with Internet

排除标准

  • 未提供

结局指标

主要结局

Define and characterize sarcoidosis phenotypes and methods of care

时间窗: Anticipated by 2017

To give a broader and less biased view of sarcoidosis

次要结局

未报告次要终点

研究者

发起方
Alicia Gerke
申办方类型
Other
责任方
Sponsor Investigator
主要研究者

Alicia Gerke

Associate Professor; Division of Pulmonary, Critial Care and Occupational Medicine

University of Iowa

研究点 (1)

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