IRCT20190618043936N1已完成未知
The effect of family-centered empowerment model on family function and care burden of primary caregivers of children with glucose-6-phosphate dehydrogenase enzyme deficiency
适应症
试验速览
- 阶段
- 未知
- 状态
- 已完成
- 入组人数
- 60
研究概览
简要总结
暂无简介。
研究设计
- 研究类型
- Interventional
入排标准
- 年龄范围
- no limit 至 no limit（—）
- 性别
- All
入选标准
- •Completion of written consent form to participate in the study
- •Having a child with glucose-6-phosphate dehydrogenase deficiency ages 6 to 14 years
- •Literacy and ability to complete the questionnaire in the main caregiver
- •The main caregiver is not a member of the medical and nursing group
- •Lack of chronic disease in other family members
- •There is no history of formal education about favic disease before the study
- •The ability to speak and listen to the patient and the main caregiver
- •Being responsible for the maximum daily care of the child
- •Having the right to decide on the prevention and treatment of childhood illness
排除标准
- •Not willing to continue participating in the scheme
- •Absence for any reason two consecutive sessions that can not attend meetings
- •Not available for communicating and informing sessions
- •To create a special event affecting the quality of life and the specific mental illness in the main caregiver
研究者
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