IRCT20190618043936N1
Completed
未知
The effect of family-centered empowerment model on family function and care burden of primary caregivers of children with glucose-6-phosphate dehydrogenase enzyme deficiency
Overview
- Phase
- 未知
- Intervention
- Not specified
- Conditions
- Glocos 6 phospat dehydrogenaz enzim definenshe.
- Sponsor
- Birjand University of Medical Sciences
- Enrollment
- 60
- Status
- Completed
- Last Updated
- 6 years ago
Overview
Brief Summary
No summary available.
Investigators
Eligibility Criteria
Inclusion Criteria
- •Completion of written consent form to participate in the study
- •Having a child with glucose\-6\-phosphate dehydrogenase deficiency ages 6 to 14 years
- •Literacy and ability to complete the questionnaire in the main caregiver
- •The main caregiver is not a member of the medical and nursing group
- •Lack of chronic disease in other family members
- •There is no history of formal education about favic disease before the study
- •The ability to speak and listen to the patient and the main caregiver
- •Being responsible for the maximum daily care of the child
- •Having the right to decide on the prevention and treatment of childhood illness
Exclusion Criteria
- •Not willing to continue participating in the scheme
- •Absence for any reason two consecutive sessions that can not attend meetings
- •Not available for communicating and informing sessions
- •To create a special event affecting the quality of life and the specific mental illness in the main caregiver
Outcomes
Primary Outcomes
Not specified
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