A qualitative exploration of the needs of patients with severe chronic obstructive pulmonary disease (COPD)

Not Applicable

Recruiting

• Conditions: chronic obstructive pulmonary disease (COPD); Respiratory - Chronic obstructive pulmonary disease

• Registration Number: ACTRN12609000017224
• Lead Sponsor: Centre for Palliative Care Education and Research

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Results First Posted: 1900-01-01
• Study Start: 2009-01-08
• Last Update Posted: 13 January 2020

Recruitment & Eligibility

• Status: Recruiting
• Sex: All
• Target Recruitment: 52

Inclusion Criteria

Patients with severe COPD
Family members of patients with severe COPD
Bereaved family members of patients with severe COPD
Health Care Professionals who work with patients with severe COPD

Exclusion Criteria

Non english speaking

Study & Design

• Study Type: Observational
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
(1) identify the concerns of patients with severe COPD and their families including physical, emotional, and social.<br><br>This will be observed/measured by means of a semi-structured interview.[This will be observed/measured by a one-off semi-structured interview];(2) obtain insights into bereaved families experiences of caring for someone with COPD and their end of life care.<br><br>This will be observed/measured by means of a semi-structured interview.[This will be observed/measured by a one-off semi-structured interview];(3) explore staff perceptions of the palliative care needs of COPD patients (and their families) <br><br>This will be observed/measured by a semi-structured interview or focus group.[This will be observed/measured by a one-off semi-structured interview or focus group]

Secondary Outcome Measures

Name	Time	Method
Explore the information needs of patients, families, bereaved families and staff with particular focus upon the illness course, prognosis and goals of care.<br><br>This will be observed/measured by a one-off semi-structured interview or focus group[This will be observed/measured by a one-off semi-structured interview or focus group]