CTRI/2021/06/034274招募中未知
Development and economic evaluation of a patient-centered care model for children with Duchenne�s or Becker�s Muscular Dystrophy in North India
Dr Amarjeet Singh0 个研究点目标入组 0 人开始时间: 待定最近更新:
试验速览
- 阶段
- 未知
- 状态
- 招募中
- 发起方
研究概览
简要总结
暂无简介。
研究设计
- 研究类型
- Interventional
入排标准
入选标准
- •(1)Families with affected boys with clinical symptoms suggestive of DMD and increased creatine kinase (CK) levels (CK >1500IU)
- •(2)Boys between 5-15 years of age.
- •(3)Laboratory confirmation:
- •oGenetic confirmation by Multiplex Ligation-Dependent Probe Amplification (MLPA)/ Polymerase Chain Reaction (PCR)/ Next-Generation Sequencing (NGS)/SANGER
- •oMuscle biopsy (showing absence of dystrophin expression genetically).
- •(4)Caregiver having smart phone or internet facility.
排除标准
- •1.Subjects/families who are unwilling to participate or unable to comply with the protocol study procedures or visits
- •2.Consent or assent not given.
研究者
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