Outcome registry for Haemophilia patients in India

India’s haemophilia care framework has been bolstered by provisions under the National Health Mission (NHM), which supplies clotting factor concentrates (CFCs) free of cost. However, despite this well-intentioned intervention, the supply of CFCs remains intermittent, and their distribution across regions is inconsistent. This leads to significant disparities in treatment access—most notably impacting patients in rural and economically disadvantaged communities. Such disparities not only hinder optimal clinical outcomes but also exacerbate financial and logistical burdens on patients and their families.The proposed study aims to address these critical gaps by analyzing cross-sectional and longitudinal data on haemophilia management in India. By examining clinical outcomes, treatment adherence, and quality of life across different patient groups, the research will generate data-driven insights essential for optimizing care models. Ultimately, the findings could drive policy recommendations that enhance the predictability of CFC supply, improve resource allocation, and ensure that all haemophilia patients receive equitable and effective treatment irrespective of their socioeconomic background. This study, therefore, represents a crucial step toward mitigating healthcare disparities and elevating the standard of haemophilia care in India.