Building on Family Strengths: An Educational Program for Parents of Children With On-Going Health Care Needs
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 129
- 主要终点
- depressive symptoms
研究概览
简要总结
The long-term goal of this research is to strengthen parents' abilities to manage the complexities of childhood chronic illness. To achieve this goal, the team of parents, health care professionals, and researchers proposes the following specific aim:
- Develop, implement, and test a unique psycho-educational program, Living with Childhood Chronic Illness (the Program), for effectiveness with parents of children who have chronic illnesses.
The investigators propose the following hypotheses:
At both 6 and 12 month follow-up points, parents taking part in the intervention, in contrast to control parents, will have:
- Greater perceived self-efficacy regarding their ability to manage the child's chronic condition;
- Greater parental ability to involve their child in shared management activities;
- Greater parental ability to cope at 6 and 12 months following the end of the intervention;
- Greater emotional health; and
- Greater parental perceived family quality of life.
详细描述
Parents will enroll in the study by contacting the study number: 206-987-1000 or by sending an email message to family.strengths@seattlechildrens.org. They will complete a survey taking no more than 60 minutes. Parents will then be randomized to either take the class immediately or be in the control group which can take the class in 12 months. At the end of 6 and 12 months all the participants again take the survey.
Classes are 7 weeks in length, 2 hours each and are offered at various locations throughout the Greater Seattle area.
研究设计
- 研究类型
- Interventional
- 分配方式
- Randomized
- 干预模型
- Single Group
- 主要目的
- Prevention
- 盲法
- None
入排标准
- 年龄范围
- 18 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 是
入选标准
- •Child 2-11 years of age, with diagnosed chronic illness
- •Parent at least 18 years of age, able to speak and read English at 4th grade level and able to attend a 7 week two-hour class program
排除标准
- •Child in active hospice treatment
结局指标
主要结局
depressive symptoms
时间窗: 6, and 12 months
次要结局
- self-efficacy(6 and 12 months)
- quality of life(6, and 12 months)
- coping(6, and 12 months)
- parent-child shared management(6, and 12 months)