Study on preferences and care options among older people living in nursing home

Completed

Conditions: Signs and Symptoms
End of life care for elderly in nursing homes

Registration Number: ISRCTN29919297

Lead Sponsor: eenaards Foundation (Switzerland)

Brief Summary: Not available

Detailed Description: Not available

Recruitment & Eligibility

Status: Completed

Sex: All

Target Recruitment: 40

Inclusion Criteria

1. Newly admitted in nursing home
2. = 65 years old
3. Suffering from a chronic disease with a potentially fatal outcome, or from a life-threatening disease
4. Mentally competent
5. Fluent in French
6. Have a close relative who agreed to participate in the study

Exclusion Criteria

1. Serious cognitive impairment
2. Already written ADs
3. Significant motor and/or sensory deficits

Study & Design

Study Type: Interventional

Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Feasibility defined as <br>Ability to enroll and retain dyads<br>1. Number of participants, close relatives recruited; timepoint: end of recruitment (31/05/2012)<br>2, Number of dyads retained after intervention (patients, close relatives); timepoint: six months after end of recruitment (31/11/2012) <br>3. Distribution of the intervention (integrity and fidelity) patients records; timepoint: six months after end of recruitment (31/11/2012)<br>4. Adherence to data collection plan; patients records; timepoint: six months after end of recruitment (31/11/2012)<br><br>Acceptability<br>5. Acceptability of the intervention for patients, close relatives; Satisfaction questionnaire; timepoint: T2= 3 months post intervention<br>6, Acceptability for nurses delivering the ACP intervention in terms of fidelity, resources mobilized and practice change. Satisfaction questionnaire; T2= 3 months post intervention

Secondary Outcome Measures

Name	Time	Method
1. Quality of end of life communication with the nurse (NHR & close relative) measured with the Quality of Patient-Clinician Communication About End of Life Care (QOC)”; timepoint: T= pre intervention (5-6 weeks after admission) and T2 post intervention (six months after admission) <br>2. Congruence in preferences and care options (dyad) measured with the «Statement of Treatment Preference (STP)» Timepoint: T1= pre intervention (5-6 weeks after admission) and T2 post intervention (six months after admission) <br>3. Perceived Burden (close relative) measured with the Brief Burden Interview (BBI) Timepoint: T1= pre intervention (5-6 weeks after admission) and T2 post intervention (six months after admission) <br>