Social and psychological support for adolescents and young adults with NF1

Erasmus Medical Center - Sophia Kinderziekenhuis0 sites100 target enrollmentTBD

Conditionseurofibromatosis type 1social and psychological supportparticipation and needsNeurofibromatose type 1sociale en psychologische ondersteuningparticipatie en zorgvraag

Overview

Phase: N/A
Intervention: Not specified
Conditions: eurofibromatosis type 1social and psychological supportparticipation and needsNeurofibromatose type 1sociale en psychologische ondersteuningparticipatie en zorgvraag
Sponsor: Erasmus Medical Center - Sophia Kinderziekenhuis
Enrollment: 100
Status: Recruiting
Last Updated: 2 years ago

Overview Investigators Eligibility Criteria Outcomes Similar Trials

Overview

Brief Summary

Registry

who.int

Start Date

TBD

End Date

TBD

Last Updated

2 years ago

Study Type

Interventional

Investigators

Sponsor

Erasmus Medical Center - Sophia Kinderziekenhuis

Eligibility Criteria

Inclusion Criteria

•Patient diagnosed with NF1 by a doctor via the official NIH criteria;
•Age: 16\-30 years;

Exclusion Criteria

•Young adolescents without official diagnosis of Neurofibromatosis type 1;
•Participants who do'nt have enough knowledge about the Dutch language to fill in the questionnaires.

Outcomes

Primary Outcomes

Not specified

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