The End Rheumatic Heart Disease in Australia Study of Epidemiology (ERASE) Project

Not Applicable

Completed

• Conditions: rheumatic heart disease; Acute Rheumatic Fever; Cardiovascular - Other cardiovascular diseases; Infection - Other infectious diseases

• Registration Number: ACTRN12620000981921
• Lead Sponsor: Dr Judith Katzenellenbogen

Brief Summary

Analysis still in progress

Detailed Description

Not available

Study Timeline

• Results First Posted: 1900-01-01
• Study Completion: 2018-12-31
• Study Start: 2020-09-30
• Last Update Posted: 5 October 2020

Recruitment & Eligibility

• Status: Completed
• Sex: All
• Target Recruitment: 42064

Inclusion Criteria

The cohort is any person, living or deceased, with a likely diagnosis of rheumatic fever or rheumatic heart disease, as identified by:

1. A record on an Australian ARF/RHD register (has been registered”) or

2. At least one hospital admission (including all public and most private hospitals) with an ICD-10-
AM (Australian Modification) code of I00 to I02 (ARF) or I05 to I09 (RHD) in any diagnosis field or

3. A death registry record coded as I00 to I02 (ARF) or I05 to I09 (RHD) or an equivalent free text field (for later periods where the cause of death coding was not available) in any cause of death field.

Exclusion Criteria

Individuals in the linked data set not deemed to have RHD or ARF as defined by the ERASE protocol. This definition has taken into account short comings in ICD coding for RHD. (Please see study protocol attached to this application)

Study & Design

• Study Type: Observational
• Study Design: Not specified