The construction of supporting model for family caregivers of people with dementia - a preliminary study of barriers and needs

Not Applicable

Completed

• Conditions: Dementia; Mental and Behavioural Disorders; Unspecified dementia

• Registration Number: ISRCTN13505830
• Lead Sponsor: Medical Center of Aging Research, China Medical University Hospital

Brief Summary

2019 protocol in https://www.ncbi.nlm.nih.gov/pubmed/30719293 (added 02/04/2020)

Detailed Description

Not available

Study Timeline

• Results First Posted: 1900-01-01
• Study Start: 2018-01-18
• Study Completion: 2018-12-31
• Last Update Posted: 27 April 2020

Recruitment & Eligibility

• Status: Completed
• Sex: All
• Target Recruitment: 38

Inclusion Criteria

The participants are divided into three groups:
Group 1 contains the primary family caregivers who live with the care recipient, regardless of age and gender
Group 2 contains people who are diagnosed with dementia. To have a complete picture from patients of dementia in terms of needs and supports in this study, people with any age and sex with a diagnosis of dementia (Alzheimer’s disease, vascular dementia or mixed Alzheimer’s and vascular dementia, or other types of dementia) who live in the community (excluding people in institutions receiving 24 hours of care). Also people at different stage of disease processes (people who are still able to express his/her views mainly) will be included
Group 3 contains healthcare professionals including neurologic or geriatric physicians, nurses, clinical psychologist, occupational therapist, social workers and paid carers

Exclusion Criteria

1. Healthcare professional who never works with dementia patients
2. Primary family caregiver who does not live with the care recipient

Study & Design

• Study Type: Interventional
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
interview results; qualitative interview results will be transcribed into text then the text will be analyzed. Thematic analysis will be used to analyze the text. Themes and subthemes will be cited from the text.

Secondary Outcome Measures

Name	Time	Method
Delphi questionnaire results; the design of the Delphi questionnaire will be based on literature review and the themes and subthemes cited from interviews.