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Growing up after surgery for congenital diaphragmatic hernia (CDH): Problems for life? A study to evaluate optimal medical and psychosocial care in CDH up till adulthood (CDH-FU)

Completed
Conditions
Congenital diafragmatic hernia
10038686
10009841
10037454
Registration Number
NL-OMON49276
Lead Sponsor
Erasmus MC, Universitair Medisch Centrum Rotterdam
Brief Summary

Not available

Detailed Description

Not available

Recruitment & Eligibility

Status
Completed
Sex
Not specified
Target Recruitment
50
Inclusion Criteria

*Diagnosed with CDH within the first 7 days of life and alive at time of
recruitment
*Born between 1989 and 2001 (patient recruitment is ongoing in 2019; minimum
age is 18 years)
*Sufficient intellectual capacities and/or command of the Dutch language to
understand instructions
*Clinically stable for > 3 weeks

Exclusion Criteria

*Serious comorbidity that might affect assessments (e.g. serious neurological
comorbidity)

Study & Design

Study Type
Observational invasive
Study Design
Not specified
Primary Outcome Measures
NameTimeMethod
Secondary Outcome Measures
NameTimeMethod
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