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Late Onset Alzheimer's Disease

Recruiting
Conditions
Alzheimer Disease
Interventions
Genetic: Blood Draw
Other: Late Onset Alzheimer's Disease (LOAD) Neuropsychological Battery Test
Registration Number
NCT05010603
Lead Sponsor
Columbia University
Brief Summary

The goal of this study is to is to focus on the genetic influences on Alzheimer's Disease (AD) risk. The investigators are looking for families and/or individuals (affected or unaffected) of any ethic background (African American, Caucasian, and Hispanics) with a family history of AD and willing to participate.

Detailed Description

The purpose of this study is to focus on the genetic influences on Alzheimer's disease (AD) risk. Specifically, the investigators hypothesize that one or more genes, other than the previously identified susceptibility gene apolipoprotein-E (APOE), or the 3 genes associated with early-onset familial AD, presenilin-1 (PS-1), presenilin-2 (PS-2) or B-amyloid precursor protein (APP), increase the risk of AD in families with multiple individuals affected with AD. The investigators propose to test this hypothesis by performing genetic linkage analysis in order to detect the chromosomal location of genes that may increase the risk of Alzheimer's disease. In addition, the investigators will study genes known to increase the risk of Alzheimer's disease and other related disorders such as early onset AD, Pick disease, corticobasal degeneration, progressive supranuclear palsy, and familial frontotemporal dementia with parkinsonism and Lewy Body Dementia.

Recruitment & Eligibility

Status
RECRUITING
Sex
All
Target Recruitment
10000
Inclusion Criteria
  • Established diagnosis of definite or probable AD or have a diagnosis of a related neurodegenerative disorder such as Frontotemporal Dementia (FTD) or Lewy Body Dementia (LBD) (will also recruit sporadic FTD and LBD) cases.
  • a living sibling with probable or possible AD;
  • a third living relative affected with AD (onset age 50 or older) or unaffected (60 or older);
  • participants in the proband's generation with an identified companion serving as an informant;
  • participants who have capacity to consent or participants lacking capacity to consent with a surrogate/proxy in place to provide consent.
Exclusion Criteria
  • failure to identify an appropriate informant;
  • uncertainty of the clinical diagnosis of Alzheimer's disease or other related disorder;
  • discovery of additional diagnosis that could account for the clinical manifestations;
  • unwillingness to participate;
  • failure to identify a living sibling with AD or other related disorder (except in the cases of sporadic FTD and sporadic LBD);
  • participants lacking the capacity to consent who do not have a surrogate or proxy or next of kin to provide consent.

Study & Design

Study Type
OBSERVATIONAL
Study Design
Not specified
Arm && Interventions
GroupInterventionDescription
Families with a history of Alzheimer's DiseaseLate Onset Alzheimer's Disease (LOAD) Neuropsychological Battery TestFamilies with two or more family members affected with Alzheimer's Disease
Individuals with Dementia (Alzheimer's Disease)Blood DrawIndividuals with dementia over the age of 65
Un-related, non-demented controlsLate Onset Alzheimer's Disease (LOAD) Neuropsychological Battery TestUn-related, non-demented healthy controls over age 55
Families with a history of Alzheimer's DiseaseBlood DrawFamilies with two or more family members affected with Alzheimer's Disease
Un-related, non-demented controlsBlood DrawUn-related, non-demented healthy controls over age 55
Individuals with Dementia (Alzheimer's Disease)Late Onset Alzheimer's Disease (LOAD) Neuropsychological Battery TestIndividuals with dementia over the age of 65
Primary Outcome Measures
NameTimeMethod
Total number of genes identified to be associated with the risk of AD5 years

Genetic Linkage Analysis to Identify Genes Associated with the risk of Alzheimer's Disease: Identification of genes by performing genetic linkage analysis, in order to detect the chromosomal location of genes that may increase the risk of Alzheimer's disease.

Secondary Outcome Measures
NameTimeMethod

Trial Locations

Locations (11)

University of Pittsburgh

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Pittsburgh, Pennsylvania, United States

Rush University

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Aurora, Illinois, United States

Indiana University

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Bloomington, Indiana, United States

University of Miami

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Miami, Florida, United States

North Carolina State University

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Raleigh, North Carolina, United States

NCRAD at Indiana University

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Indianapolis, Indiana, United States

Joanne Norton

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Saint Louis, Missouri, United States

University of Texas Southwestern

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Dallas, Texas, United States

University of Washington

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Seattle, Washington, United States

Columbia University Irving Medical Center

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New York, New York, United States

Mayo Clinic

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Rochester, Minnesota, United States

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