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临床试验/NCT05213663
NCT05213663已完成不适用

Investıgatıon Of The Awareness Of The Parents Of The Cerebral Palsy Children About The Disease, Physiotherapy And Rehabilitation

Kahramanmaras Sutcu Imam University1 个研究点 分布在 1 个国家目标入组 80 人开始时间: 2022年1月1日最近更新:
适应症

试验速览

阶段
不适用
状态
已完成
发起方
入组人数
80
试验地点
1
主要终点
1/The awareness of parents of children with Cerebral Palsy (CP) about the disease, physiotherapy and rehabilitation

研究概览

简要总结

Parents of Cerebral Palsy (CP) children participate in treatments, education services and general medical check-ups; They have many responsibilities such as the use of drugs, devices, educational materials. Therefore, involving parents of CP children in the rehabilitation process provides a stronger rehabilitation service for their children. In the studies, it was stated that the active participation of the parents in the physiotherapy and rehabilitation process increases the success rate of the treatment and the participation of the parents plays a key role for the success of the physiotherapy and rehabilitation.

详细描述

Cerebral Palsy (CP) children have a different clinical picture that includes many diseases. Abnormal muscle tone, insufficiency of postural control, weakness of muscle strength, abnormal behavior patterns and sensory problems are common symptoms, especially motor impairment can be in these children. These symptoms cause orthopedic problems, deformity and developmental delay over time. Motor disorders may be accompanied by various problems such as cognitive disorders, sensory, speech, cognitive, communication and behavioral problems, epilepsy and secondary musculoskeletal system problems. Functional skills such as independent sitting, standing, walking, balance, coordination, and fine motor skills are affected in these children due to different damage of neuronal system. This negatively affects the independence of activity in the child's daily life. CP children's treatment; It is carried out by a multidisciplinary team of specialists, such as specialist physicians, physiotherapists, psychologists, social counselors, child neurologists, orthopedists, vision-hearing specialists, pediatricians, occupational therapists, special educators, orthotics technicians, and with the participation of parents. The most important element of the rehabilitation team is the parents. In the postnatal period, parents are the primary responsible persons for the care of the child. This responsibility increases even more in the child with CP. The motor activity loss and movement disorder that develops in a child increase the functional dependency of the child in his daily life and cause him to need more support. All family members are somehow involved in the health services provided to these children. Parents are constantly involved in the life of the CP children and become aware of their child's abilities and needs. Parents of children participate in treatments, education services and general medical check-ups; They have many responsibilities such as the use of drugs, devices, educational materials. Therefore, involving parents of children in the rehabilitation process provides a stronger rehabilitation service for their children. In the studies, it was stated that the active participation of the parents in the physiotherapy and rehabilitation process increases the success rate of the treatment and the participation of the parents plays a key role for the success of the physiotherapy and rehabilitation. Parental support contributes to health and well-being and influences the success of long-term rehabilitation. With the increasing importance of family-centered practices in recent years, parents have started to take an active part in rehabilitation studies by continuing the practices in the clinic at home and in the community. It is an increasingly important view that parents play an important role in the lives of CP children. The acceptance of family-oriented care and the emergence of new theories on motor development have affected the treatment approach to these children, and the practices have become more family and function-centered rather than child-centered. The aim of this study is to investigate the awareness of parents of CP children about the disease, sports and physiotherapy and rehabilitation.

研究设计

研究类型
Observational
观察模型
Family Based
时间视角
Prospective

入排标准

年龄范围
4 Years 至 18 Years(Child, Adult)
性别
All
接受健康志愿者

入选标准

  • Being the parents of children with cerebral palsy between the ages of 4-18
  • Volunteering to participate in the study
  • Having communication skills to answer the questions in the personal information form and the evaluation form.

排除标准

  • Having any psychiatric diagnosis of parents

结局指标

主要结局

1/The awareness of parents of children with Cerebral Palsy (CP) about the disease, physiotherapy and rehabilitation

时间窗: first day of assessment

The awareness of parents of children with Cerebral Palsy (CP) about the disease, physiotherapy and rehabilitation will be assessed with a 50-question questionnaire prepared by the researcher.

次要结局

  • Demographic information of the children(first day of assessment)
  • Demographic information of parents(first day of assessment)

研究者

发起方
Kahramanmaras Sutcu Imam University
申办方类型
Other
责任方
Principal Investigator
主要研究者

Hatice Adiguzel

Assistant Proffessor

Kahramanmaras Sutcu Imam University

研究点 (1)

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