Intergenerational Connections: Reminiscence and Digital Storytelling to Improve Social and Emotional Well-being of Older Adults With ADRD
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 206
- 试验地点
- 2
- 主要终点
- Affect of older adults
研究概览
简要总结
The goal of this clinical trial is to develop and test how reminiscence offered by trained young adult volunteers using a digital storytelling (DST) platform may help older persons with Alzheimer's disease and related dementias (ADRD) to improve their social and emotional well-being. The main questions it aims to answer are:
- Whether is this reminiscence and DST based intervention effective in improving social and emotional well-being of older adults with ADRD?
- Whether do young adult participants improve their social and emotional well-being as well as knowledge and attitudes towards aging after participating this study?
Older adult participants in the intervention group will receive 6 sessions of life-review with young adult volunteers and create a DST based on their life review discussion in the last 4 weeks. Older adult participants in the social wellness control group will receive 6 sessions of general talks with young adults and create a non-digital scrapbook or journal at week 7-10. Researchers will compare these two groups to see if participants in the intervention group benefit more on their well-being.
详细描述
Project Significance:
The number of persons aged 65 and older with Alzheimer's disease and related dementias (ADRD) is estimated to reach 7.1 million by 2025. Most older adults with ADRD live in the community and many of them live alone. There is growing concern about social isolation, loneliness, and diminished emotional well-being among persons with ADRD. Research suggests that reminiscence strategies combined with an intergenerational approach may yield significant social and mental health benefits for older adults. Recently, experts have recommended the production of a digital life story book as part of reminiscence. Reminiscence is typically implemented by trained professionals (e.g. social workers, nurses), however, there has been growing interest in using trained volunteers due to staffing shortages and the costs associated with reminiscence programs. The proposed study will develop and test how reminiscence offered by trained young adult volunteers using a digital storytelling (DST) platform may help older persons with ADRD to improve their social and emotional well-being. The proposed study is well-aligned with the RRF Foundation for Aging's mission to improve the quality of life for older people and also addresses a key research priority of RRF Foundation for Aging, social and intergenerational connectedness.
Project Goals and Objectives:
Goal 1: Quantitatively test the effectiveness of this intervention in improving social well-being of older adults with ADRD. The objectives are to: (1) provide a 10-session intervention with reminiscence and DST to older adults by trained young adult volunteers, and (2) test whether older adults report significant improvement in quality of life and/or a decline in loneliness after the intervention.
Goal 2: Quantitatively test the effectiveness of this intervention in improving emotional well-being of older adults with ADRD. The objectives are to: (1) provide a 10-session intervention with reminiscence and DST to older adults by trained young adult volunteers, and (2) test whether older adults report significant changes in affect and/or resilience after the intervention.
研究设计
- 研究类型
- Interventional
- 分配方式
- Randomized
- 干预模型
- Parallel
- 主要目的
- Supportive Care
- 盲法
- Single (Participant)
入排标准
- 年龄范围
- 65 Years 至 —（Older Adult）
- 性别
- All
- 接受健康志愿者
- 是
入选标准
- 未提供
排除标准
- 未提供
结局指标
主要结局
Affect of older adults
时间窗: up to 6 months
Positive affect (PA) and negative affect (NA) of older adults will be conducted with Positive and Negative Affect Schedule (PANAS). Ten positive and Ten negative emotions will be asked using a 5-point scale. Sum scores will be calculated with higher scores indicating more PA and NA respectively, with potential range of 10-50 for each sum score.
Loneliness of older adults
时间窗: up to 6 months
Loneliness will be measured by the De Jong Gierveld Loneliness Scale. Six items will be asked, each is measured with a 5 Likert scale. High sum scores indicate great loneliness with a potential range of 6-30.
Resilience of older adults
时间窗: up to 6 months
Resilience of older adults will be measured using the Brief Resilience Scale (BRS). Six items will be asked and each item ranges from 1 (low resilience) to 5 (high resilience). Total scores will be calculated for final analysis with a potential range of 6-30. The higher the sum score, the more resilience of older adults.
Quality of life of older adults
时间窗: up to 6 months
Older adults' quality of life will be measured using the Quality of Life-Alzheimer's Disease (QoL-AD). Thirteen items will be asked with each rated by a scale of 1-4 (poor, fair, good, or excellent). Sum scores will be calculated for final analysis with a potential range of 13-52. The higher the QoL-AD score, the better is the quality of life.
次要结局
- Loneliness of young adult(up to 6 months)
- Knowledge of ADRD(up to 6 months)
- Attitudes toward aging(up to 6 months)
研究者
Ling Xu
Associate Professor
The University of Texas at Arlington