跳至主要内容
临床试验/NL-OMON48893
NL-OMON48893招募中不适用

A retrospective and prospective longitudinal observational study to assess changes in working capacity related to disease specific factors in Huntington*s disease - Working capacity and burn out in Huntington's Disease (HD-work)

eids Universitair Medisch Centrum0 个研究点目标入组 170 人开始时间: 待定最近更新:
适应症

试验速览

阶段
不适用
状态
招募中
入组人数
170

研究概览

简要总结

暂无简介。

研究设计

研究类型
Observational

入排标准

年龄范围
18 至 99(—)

入选标准

  • All eligible participants must meet the following inclusion criteria:
  • - Have a confirmed CAG-expansion of *36 in the HTT gene.
  • - Be employed, or have been employed 2 years prior to assessment, in any capacity (e.g. full time (paid job for 36 hours or more), part-time (paid job for less than 36 hours) or volunteer (unpaid job)).
  • - Be at least 18 years of age.
  • - Be at most 64 years of age, due to the longitudinal set up of the research and the age of retirement in the Netherlands.

排除标准

  • All eligible participants must meet none of the following exclusion criteria:
  • - Major general or neurological comorbidity that is unrelated to HD.
  • - Any other condition that in the opinion of the investigator warrants exclusion of the study.
  • - Inability to understand the information about the study.

研究者

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