NL-OMON48893
Recruiting
Not Applicable
A retrospective and prospective longitudinal observational study to assess changes in working capacity related to disease specific factors in Huntington*s disease - Working capacity and burn out in Huntington's Disease (HD-work)
Overview
- Phase
- Not Applicable
- Intervention
- Not specified
- Conditions
- Huntington's Disease
- Sponsor
- eids Universitair Medisch Centrum
- Enrollment
- 170
- Status
- Recruiting
- Last Updated
- 2 years ago
Overview
Brief Summary
No summary available.
Investigators
Eligibility Criteria
Inclusion Criteria
- •All eligible participants must meet the following inclusion criteria:
- •\- Have a confirmed CAG\-expansion of \*36 in the HTT gene.
- •\- Be employed, or have been employed 2 years prior to assessment, in any capacity (e.g. full time (paid job for 36 hours or more), part\-time (paid job for less than 36 hours) or volunteer (unpaid job)).
- •\- Be at least 18 years of age.
- •\- Be at most 64 years of age, due to the longitudinal set up of the research and the age of retirement in the Netherlands.
Exclusion Criteria
- •All eligible participants must meet none of the following exclusion criteria:
- •\- Major general or neurological comorbidity that is unrelated to HD.
- •\- Any other condition that in the opinion of the investigator warrants exclusion of the study.
- •\- Inability to understand the information about the study.
Outcomes
Primary Outcomes
Not specified
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