on-kin caregivers of terminally ill people: Contributions, experiences and needs
- Conditions
- on-kin caregivers of patients suffering from a malignant or non-malignant life-limiting chronic disease
- Registration Number
- DRKS00033889
- Lead Sponsor
- Medizinische Hochschule Hannover, Institut für Allgemeinmedizin und Palliativmedizin / Universitätklinikum Erlangen, Palliativmedizinische Abteilung
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Pending
- Sex
- All
- Target Recruitment
- 150
Inclusion Criteria
Non-kin caregivers providing care at least weekly for at least 4 hours per week, as unpaid, non-contractual, voluntary work outside of a professional or formal framework to a care-recipients who must be suffering from a malignant or non-malignant life-limiting chronic disease
Exclusion Criteria
cognitive impairment such as dementia; signiticant emotional distress during interview; withdrawl of consent to participate
Study & Design
- Study Type
- observational
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method construction of a broad conceptual framework of non-kin caregiving
- Secondary Outcome Measures
Name Time Method observation of specific burdens, needs, and benefits of non-kin caregivers, the extent and type of care they provide