Adaptation of a Knowledges Exchange Portal Between (KEP) Healers and Patients : Obstacles and Sources to KEP Use for Breast Cancer Women

Completed

• Conditions: Breast Cancer

• Registration Number: NCT03472794
• Lead Sponsor: University Hospital, Bordeaux

Brief Summary

The project is imbued with the whole problematic of patient follow-up and patient support, taking into account the experiences and needs of breast cancer patients. It concerns the dissemination of knowledge through the implementation of a specific clinical innovation designed to optimizing breast cancer patient pathway. The " Patients en réseau " association offers us to participate at the web platform evolution Mon Réseau Cancer du Sein in adapting it. The feasibility study focuses on (1) the platform utilization and (2) sources and obstacles to its utilization in the French context

Detailed Description

One of the French Cancer Plan 2014-2019 objectives is to improve the town-hospital coordination and information's exchange between professionals. This research project aims to reach this important objective of exchange development and the amelioration of the coordination concerning breast cancer women. Breast cancer requires the integration of aggressive treatments implying physical, psychological and social consequences. That's why an optimized care pathway needs a coordinated and multidisciplinary organization, and more particularly a personalized approach taking into account the whole patients' needs in physical, psychological and social perspectives. To reach this goal, it is important to support those patients, to answer their needs for a better disease management in their own health pathways. The research issues lie in this outcome.

The project is imbued with the whole problematic of patient follow-up and patient support, taking into account the experiences and needs of breast cancer patients. It concerns the dissemination of knowledge through the implementation of a specific clinical innovation designed to optimizing breast cancer patient pathway.

The " Patients en réseau " association offers us to participate at the web platform evolution Mon Réseau Cancer du Sein in adapting it. The feasibility study focuses on (1) the platform utilization and (2) sources and obstacles to its utilization in the French context

Study Timeline

• Study First Submitted: 2018-01-31
• Study First Submitted QC: 2018-03-13
• Study Start: 2018-03-16
• Study First Posted: 2018-03-21
• Primary Completion: 2019-06-17
• Study Completion: 2019-06-17
• Status Verified: 2019-09
• Last Update Submitted: 2019-09-03
• Last Update Posted: 2019-09-04

Recruitment & Eligibility

• Status: COMPLETED
• Sex: All
• Target Recruitment: 35

Inclusion Criteria

Not provided

Exclusion Criteria

Not provided

Study & Design

• Study Type: OBSERVATIONAL
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Feasability of the web portal	Month 6	Number of connections to the portal each month: * Types of documents consulted; * Types of downloaded documents; * Types of documents sought; * Connection duration; * Number of connections; * Number of comments / questions posted; * Number of comments / questions viewed; * Number of comments / questions sought

Secondary Outcome Measures

Name	Time	Method
Number of status posted	Month 6	Number of status posted
Number of "mood" posted	Month 6	Number of "mood" posted
Number of private posts posted	Month 6	Number of private posts posted
Number of cards consulted	Month 6	Number of cards consulted
Headings of cards consulted	Month 6	Headings of cards consulted
Number of videos consulted	Month 6	Number of videos consulted
Headings of videos consulted	Month 6	Headings of videos consulted
Number of upcoming events consulted	Month 6	Number of upcoming events consulted
Number of comments/questions posted	Month 6	Number of comments/questions posted
Number of "like" emoticon posted	Month 6	Number of "like" emoticon posted
Number of address consulted in the address list	Month 6	Number of address consulted in the address list
Number of webpages used	Month 6	Number of webpages used
Number of the portal connections realized each month	Month 6	Number of the portal connections realized each month
Number of "comfort" emoticon posted	Month 6	Number of "comfort" emoticon posted
Number of "favorites" emoticon posted	Month 6	Number of "favorites" emoticon posted
Number of webpages consulted	Month 6	Number of webpages consulted
Headings of leaflets consulted	Month 6	Headings of leaflets consulted
Number of leaflets consulted	Month 6	Number of leaflets consulted

Trial Locations

Locations (1)

Institut Bergonié; 🇫🇷 Bordeaux, France