Adaptation of a Knowledges Exchange Portal (KEP) Between Healers and Patients : Study of Obstacles and Sources to the Use of a KEP in the Case of Women Affected by a Breast Cancer in Nouvelle Aquitaine(Sav-AQ)
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 发起方
- 入组人数
- 35
- 试验地点
- 1
- 主要终点
- Feasability of the web portal
研究概览
简要总结
The project is imbued with the whole problematic of patient follow-up and patient support, taking into account the experiences and needs of breast cancer patients. It concerns the dissemination of knowledge through the implementation of a specific clinical innovation designed to optimizing breast cancer patient pathway. The " Patients en réseau " association offers us to participate at the web platform evolution Mon Réseau Cancer du Sein in adapting it. The feasibility study focuses on (1) the platform utilization and (2) sources and obstacles to its utilization in the French context
详细描述
One of the French Cancer Plan 2014-2019 objectives is to improve the town-hospital coordination and information's exchange between professionals. This research project aims to reach this important objective of exchange development and the amelioration of the coordination concerning breast cancer women. Breast cancer requires the integration of aggressive treatments implying physical, psychological and social consequences. That's why an optimized care pathway needs a coordinated and multidisciplinary organization, and more particularly a personalized approach taking into account the whole patients' needs in physical, psychological and social perspectives. To reach this goal, it is important to support those patients, to answer their needs for a better disease management in their own health pathways. The research issues lie in this outcome.
The project is imbued with the whole problematic of patient follow-up and patient support, taking into account the experiences and needs of breast cancer patients. It concerns the dissemination of knowledge through the implementation of a specific clinical innovation designed to optimizing breast cancer patient pathway.
The " Patients en réseau " association offers us to participate at the web platform evolution Mon Réseau Cancer du Sein in adapting it. The feasibility study focuses on (1) the platform utilization and (2) sources and obstacles to its utilization in the French context
研究设计
- 研究类型
- Observational
- 观察模型
- Case Only
- 时间视角
- Prospective
入排标准
- 年龄范围
- 18 Years 至 —(Adult, Older Adult)
- 性别
- All
- 接受健康志愿者
- 是
入选标准
- 未提供
排除标准
- 未提供
结局指标
主要结局
Feasability of the web portal
时间窗: Month 6
Number of connections to the portal each month: * Types of documents consulted * Types of downloaded documents * Types of documents sought * Connection duration * Number of connections * Number of comments / questions posted * Number of comments / questions viewed * Number of comments / questions sought
次要结局
- Number of status posted(Month 6)
- Number of "mood" posted(Month 6)
- Number of private posts posted(Month 6)
- Number of cards consulted(Month 6)
- Headings of cards consulted(Month 6)
- Number of videos consulted(Month 6)
- Headings of videos consulted(Month 6)
- Number of comments/questions posted(Month 6)
- Number of "like" emoticon posted(Month 6)
- Number of address consulted in the address list(Month 6)
- Number of webpages used(Month 6)
- Number of webpages consulted(Month 6)
- Headings of leaflets consulted(Month 6)
- Number of the portal connections realized each month(Month 6)
- Number of "comfort" emoticon posted(Month 6)
- Number of "favorites" emoticon posted(Month 6)
- Number of upcoming events consulted(Month 6)
- Number of leaflets consulted(Month 6)
