Qualitative Analysis of the Post-Stroke Continuum Among African Stroke Survivors in Alabama
Overview
- Phase
- Not Applicable
- Intervention
- Not specified
- Conditions
- Stroke
- Sponsor
- University of Alabama at Birmingham
- Primary Endpoint
- Feasibility of recruitment and retention
- Status
- Withdrawn
- Last Updated
- 2 years ago
Overview
Brief Summary
This proposal seeks to improve the investigators' post-stroke TOC process through developing an innovative, patient informed and guided solution aimed at addressing the investigators' deep south African American population within the UAB system. The investigators will engage participants in both urban and rural Alabama through informational interviews and work to find common themes to address so that future interventions are useful to their unique needs and desires. This goes beyond simply identifying barriers and endeavors to discovering solutions.
Investigators
Danny Lee
Clinical Research Administrator II
University of Alabama at Birmingham
Eligibility Criteria
Inclusion Criteria
- •African American
- •Aged 40 years and older
- •Required home health therapy, outpatient therapy, skilled nursing facility or inpatient rehabilitation
- •Alabama Resident
- •Fluent in English
- •Stroke confirmed by advanced imaging (CT, MRI)
- •Zoom capability (participants can either have video conference ability or can call into Zoom line)
- •Caregivers must be identified by patients as providing a significant portion of care and/or be able to articulate their role as a caregiver
Exclusion Criteria
- •Did not require home health therapy, outpatient therapy or inpatient rehabilitation
- •Long term residents of skilled nursing facility
- •Severe aphasia
- •Severe cognitive impairments
Outcomes
Primary Outcomes
Feasibility of recruitment and retention
Time Frame: July 1,2022-January 20, 2023
The investigators will screen 60-100 individuals with the goal of enrolling a total of 20 AA (African American) stroke survivors +/- their identified caregivers. Historically, there has been low recruitment and retention rates for AAs. The investigators plan to over-recruit in order to account for this phenomenon and track our success/failure rates with percent retained vs recruited.
Ability to use Zoom platform
Time Frame: July 1,2022-January 20, 2023
The Zoom platform is becoming a more popular avenue to conduct qualitative interviews for research purposes among researchers and participants. The investigators will evaluate if this reported phenomenon is reproducible within this particular research cohort. Success will measured by a 50% or greater completion of interview and the ability to successfully connect to the zoom platform either via smart device or telephone dial in. The investigators will also document any technical difficulties that are encountered from either the interviewer's standpoint or the participant's standpoint.
Validity of questions asked to arrive at the themes that will appropriately inform the basis of this proposal
Time Frame: February 2023-May 2023
We will extract data from transcriptions of participants' Zoom interviews and perform thematic analysis