Investigating Physical Activity Levels of Parents of Children With Cystic Fibrosis and Its Influence on Their Children's Physical Activity Levels and Nebuliser Use
Overview
- Phase
- N/A
- Intervention
- Not specified
- Conditions
- Cystic Fibrosis in Children
- Sponsor
- Cambridge University Hospitals NHS Foundation Trust
- Enrollment
- 30
- Primary Endpoint
- GPAQ
- Last Updated
- 3 years ago
Overview
Brief Summary
This study will investigate if parental physical activity levels, assessed by providing a physical activity questionnaire to parents of children aged 6-16 with Cystic Fibrosis (CF), is associated with their child with CF's physical activity levels. Children's activity levels will be taken from electronic records where a questionnaire is routinely given at annual reviews to analyse this. Parental activity levels will also be compared against adherence to nebulisers as a proxy for adherence to treatment, this data is again in the electronic records of patients and is collected at annual reviews.
Investigators
Kieren Lock
Principal Investigator
Cambridge University Hospitals NHS Foundation Trust
Eligibility Criteria
Inclusion Criteria
- •Parents of Children aged 5-16 years.
- •Under the care of Cambridge University Hospitals CF team
- •Confirmed Cystic Fibrosis diagnosis
- •Uses an ineb as main nebulizer delivery device.
- •Parental/guardian permission (informed consent) and if appropriate, child assent.
Exclusion Criteria
- •Parents of CYP diagnosed with a CF screen positive inconclusive diagnosis (SPID).
- •If not yet doing lung function.
- •If has any other self-identified physical disability which may limit physical activity.
Outcomes
Primary Outcomes
GPAQ
Time Frame: Reviews the past 7 days activities.
Activity questionnaire for parents
Secondary Outcomes
- CPAQ(Reviews the past 7 days activities.)
- YPAQ(Reviews the past 7 days activities.)
- Ineb adherence(1 year)
- Lung function(Best score in the last 1 year.)