Prospective Longitudinal Cohort Study Children with Vision Impairment - PLoCC-VI

Stichting ter Verbetering van het Lot der Blinden0 个研究点目标入组 200 人开始时间: 待定最近更新: 2024年4月15日

适应症

试验速览

暂无简介。

•In order to obtain a representative research group, all children between the
•selected ages who are registered at the regional centres of Bartiméus and Royal
•Visio are invited to participate. Inclusion criteria are:
•o For the baby cohort: Age at the start of participation in the project is
•between six and 30 months. For the intensive cohort the age is between six and
•20 months. For the teenager cohort: Initial age is between 12 and 14 years.
•o The participant has to grow up in a family, with care by one or two
•(foster/step)parents
•o Parents and teenager partcipants master the Dutch language
•o Registered at one of the regional centers of Bartiméus or Royal Visio. For
•the teenager cohort, registration for special education or itinerant teacher
•support also applies.
•o The following information must be present: visual functioning (minimum vision
•both eyes together or best eye, field of vision), type of eye condition,
•disorder/disease/syndrome, date of birth, term date, status comorbid disorders
•Parents and siblings of the children with VI (if present) will be involved in
•the study and they are asked to participate in the measurements. Participation
•of (a) parent(s) is compulsory, that of siblings is not. There is no age limit
•for the siblings when participating in video recordings (intensive cohort). For
•the measurements among well-being (extensive cohort), siblings should be at
•least four years old.

发起方

Stichting ter Verbetering van het Lot der Blinden