Addressing Barriers to Palliative Care Use in Bladder Cancer Through Better Understanding of Knowledge and Belief Development
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 54
- 试验地点
- 1
- 主要终点
- Development of palliative care knowledge and beliefs
研究概览
简要总结
Investigators plan to establish an in-depth understanding of knowledge and beliefs about palliative care in advanced Bladder Cancer patients and their caregivers, and to identify factors associated with positive and negative experiences with palliative care services among those who have received them.
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Prospective
入排标准
- 年龄范围
- 18 Years 至 —(Adult, Older Adult)
- 性别
- All
- 接受健康志愿者
- 是
入选标准
- •Eligibility for both patient and caregiver participants will include:
- •age ≥18 years
- •able to speak and read English
- •cognitively able to participate in study tasks
- •willing to participate in surveys, semi-structured interviews, and/or focus groups
- •able to participate in either a Zoom meeting or phone interview
- •able to complete an emailed or paper survey
- •Patient Participants: a diagnosis of muscle-invasive or locally advanced bladder cancer (stages II-IV).
排除标准
- •Patients and caregivers will be excluded if unable to provide verbal or written consent
结局指标
主要结局
Development of palliative care knowledge and beliefs
时间窗: 12 Months
Thematic analysis of interviews transcriptions to identify the themes that underpin the development of palliative care beliefs among patients with muscle invasive bladder cancer.
Proportion with accurate palliative care knowledge and beliefs
时间窗: 12 Months
Proportion of patients correctly answering each palliative care knowledge question.
次要结局
- Association between Bladder Cancer stage and palliative care knowledge(12 Months)
