Registry for Patients With Desmoplastic Small Round Cell Tumor
试验速览
- 阶段
- 不适用
- 状态
- 招募中
- 入组人数
- 250
- 试验地点
- 1
- 主要终点
- Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor
研究概览
简要总结
This study is a patient registry of people with Desmoplastic Small Round Cell Tumor (DSRCT). A patient registry is a collection of health information about a group of people, and it is usually focused on a specific diagnosis or disease.
The purpose of this registry is to create a database- a collection of information-or better understanding DSRCT. Researchers will use the information from this database to learn more about DSRCT and for current and future research on DSRCT.
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Other
入排标准
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Participants must have a diagnosis of desmoplastic small round cell tumor
- •Participants may be of any age as long as the appropriate consent and assent may be obtained
- •Willing to provide historical and longitudinal clinical data
排除标准
- •Participant unwilling to provide consent or share historical and longitudinal clinical data
研究组 & 干预措施
Desmoplastic small round cell tumor (DSRCT)
Collect historical/longitudinal clinical, radiographic and molecular features of DSRCT patients as documented in medical records to improve knowledge about DSRCT
结局指标
主要结局
Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor
时间窗: 7 years
The aim of this study is the collection of data.
次要结局
未报告次要终点