Family Centered Services in Cerebral Palsy

Completed

• Conditions: Cerebral Palsy

• Registration Number: NCT06572787
• Lead Sponsor: Hacettepe University

Brief Summary

To examine the family-centered service characteristics of physiotherapy and rehabilitation services received by children with cerebral palsy (CP) and to investigate the affecting factors.

Detailed Description

Children with Cerebral Palsy (CP) attend special education and rehabilitation centers to receive physiotherapy and rehabilitation (PT) services, and it is very important for parents to be informed about the services offered in these centers. Our aim in the study was to examine which factors affect family-centered characteristics and parental perceptions in the PT services received by children with CP. For this purpose, 100 children diagnosed with CP between the ages of 2-18 and their parents were included in the study. The Measure of Processes Care (MPOC) survey was used to assess parents' perceptions of the family-centered features of (PT) services. These perceptions were examined to determine whether they vary depending on the child's age, functional level, parents' educational status, the impact of their disabled children, and health-related quality of life. The Family Impact Scale was used to measure parents' level of influence from their disabled children, and the Nottingham Health Profile survey was used to evaluate their health-related quality of life.

Study Timeline

• Study Start: 2023-10-20
• Primary Completion: 2024-04-20
• Study Completion: 2024-05-27
• Status Verified: 2024-08
• Study First Submitted: 2024-08-22
• Study First Submitted QC: 2024-08-22
• Last Update Submitted: 2024-08-22
• Study First Posted: 2024-08-27
• Last Update Posted: 2024-08-27

Recruitment & Eligibility

• Status: COMPLETED
• Sex: All
• Target Recruitment: 100

Inclusion Criteria

• Having a child aged between 2 and 18 years diagnosed with cerebral palsy
• Receiving physiotherapy and rehabilitation services for at least one year
• The family's consent to participate in the study and their approval for their child to be assessed by the researcher physiotherapist and for their information to be collected within the scope of the study

Exclusion Criteria

• Parents over the age of 65
• Parents who do not speak Turkish
• Having another child with a disability

Study & Design

• Study Type: OBSERVATIONAL
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Measure of Processus of Care	3 months	Measure of Processus of Care-20 (MPOC-20) survey was administered to assess parents' perceptions of the family-centered features of physiotherapy and rehabilitation services. The appropriate answers to the questions in the survey are marked with a number from 1 (strongly disagree) to 7 (strongly agree). A value of zero (0) indicated not personally relevant.

Secondary Outcome Measures

Name	Time	Method
Impact on Family Scale	3 months	The Impact on Family of Scale (IPFAM) scale was used to determine impact of the child with CP on parents. IPFAM consists of 33 items in total. The family's level of involvement is measured under 5 headings.The scale has a Likert-type evaluation ranging from 1 to 4. A low score from the survey indicates a high level of family involvement
Nottingham Health Profile	3 months	The Nottingham Health Profile (NHP) was used to measure parents' health-related quality of life. NHP is a scale used to assess quality of life. This profile was developed to measure the physical, emotional and social health status of individuals. The questionnaire consists of 7 subsections and a total of 45 items. The maximum score that can be obtained from the questionnaire is 607. High scores indicate low quality of life and low scores indicate high quality of life

Trial Locations

Locations (1)

Hacettepe Universty; 🇹🇷 Ankara, Sıhhiye, Turkey