The Impact of a Diagnosis of Parkinson's on Work
- Conditions
- Parkinson Disease
- Interventions
- Other: Usual care
- Registration Number
- NCT03905954
- Lead Sponsor
- Oxford Brookes University
- Brief Summary
Parkinson's disease leads to loss of employment on average within less than 10 years of disease onset and has been found to be associated with an increased absence from work. This combined with hospitalisation; use of secondary health services; drug usage; and caregivers needing to give up work contributed to the costs associated with the conditions. It has been estimated that early support for working age newly diagnosed would cost the government about 1.5 million Euro in the UK but might lead to a potential cost saving of over half a billion over 5 years.
The study will explore the impact of a Parkinson diagnosis on employment. The study will be survey based and will include demographic questions: age, age at diagnosis of PD, educational level, and Nationality; questions pertaining to employment type, history, and reasons for leaving if this happened; and also general health.
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- COMPLETED
- Sex
- All
- Target Recruitment
- 696
Diagnosis of Parkinson
None
Study & Design
- Study Type
- OBSERVATIONAL
- Study Design
- Not specified
- Arm && Interventions
Group Intervention Description Parkinson's Diagnosis Usual care Usual care
- Primary Outcome Measures
Name Time Method Main occupation in the last 7 days baseline only (cross sectional) Questions asks: 'Which of these descriptions applies to your main occupation in the last seven days? and has the following options.
'In paid work (OR AWAY TEMPORARILY) (employee, self-employed, working for your family business) Unemployed and actively looking for a job Unemployed, wanting a job but not actively looking for a job Permanently sick or disabled In community or military service Doing housework, looking after children or other persons Retired In paid work (OR AWAY TEMPORARILY) (employee, self-employed, working for your family business) Unemployed and actively looking for a job Unemployed, wanting a job but not actively looking for a job Permanently sick or disabled In community or military service Doing housework, looking after children or other persons Retired Student
- Secondary Outcome Measures
Name Time Method Type of Work baseline only (cross sectional) Questions asks: 'Which category would best describe your current main occupation or skill set?' Managers or directors Professionals Technicians and Associate Professionals Clerical Support Workers Services and Sales Workers Skilled Agricultural, Forestry, and Fishery Workers Craft and Related Trades Workers Plant and Machine Operators and Assemblers Elementary Occupations eg salespersons, domestic, helpers, porters Armed Forces Occupations
Symptom Severity-Distress baseline only (cross sectional) 0-10 visual analogue scale (0 worst - 10 best)
Symptom Severity-Pain baseline only (cross sectional) 0-10 visual analogue scale (0 worst - 10 best)
Symptom Severity-Fatigue baseline only (cross sectional) 0-10 visual analogue scale (0 worst - 10 best)
Symptom Severity-Depression baseline only (cross sectional) 0-10 visual analogue scale (0 worst - 10 best)
Symptom Severity-Anxiety baseline only (cross sectional) 0-10 visual analogue scale (0 worst - 10 best)
Symptom Severity - Sleep baseline only (cross sectional) 0-10 visual analogue scale (0 worst - 10 best)
Single Item Physical activity baseline only (cross sectional) Days per week of physical activity lasting 30 minutes or longer on a 0-7 integer scale
Single Item Diet baseline only (cross sectional) Portions of fruit and vegetables consume per day on a 0-5+ integer scale
Trial Locations
- Locations (1)
Oxford Brookes University
🇬🇧Oxford, Oxfordshire, United Kingdom