The neurocognitive functioning and behaviour of children aged six to twelve years with a syndromic or complex craniosynostosis.
试验速览
- 阶段
- 不适用
- 状态
- 尚未招募
- 发起方
- 入组人数
- 85
研究概览
简要总结
Obstructive sleep apnea-specific quality of life and behavioral problems in children with syndromic craniosynostosis. Bannink N, Maliepaard M, Raat H, Joosten KF, Mathijssen IM. J Dev Behav Pediatr. 2011 Apr;32(3):233-8.
Reliability and validity of the obstructive sleep apnea-18 survey in healthy children and children with syndromic craniosynostosis. Bannink N, Maliepaard M, Raat H, Joosten KF, Mathijssen IM. J Dev Behav Pediatr. 2011 Jan;32(1):27-33.
Health-related quality of life in children and adolescents with syndromic craniosynostosis. Bannink N, Maliepaard M, Raat H, Joosten KF, Mathijssen IM. J Plast Reconstr Aesthet Surg. 2010 Dec;63(12):1972-81. Epub 2010 Mar 10.
Surviving meningococcal septic shock: health consequences and quality of life in children and their parents up to 2 years after pediatric intensive care unit discharge. Buysse CM, Raat H, Hazelzet JA, Hop WC, Maliepaard M, Joosten KF. Crit Care Med. 2008 Feb;36(2):596-602. Long-term health status in childhood survivors of meningococcal septic shock. Buysse CM, Raat H, Hazelzet JA, Hulst JM, Cransberg K, Hop WC, Vermunt LC, Utens EM, Maliepaard M, Joosten KF. Arch Pediatr Adolesc Med. 2008 Nov;162(11):1036-41.
研究设计
- 研究类型
- Observational
入排标准
入选标准
- •All children receiving treatment at the Cranio-Facial Center ErasmusMC-Sophia with syndromic craniosynostosis (such as Apert syndrome, Crouzon/Pfeiffer syndrome, Muenke syndrome, Saethre-Chotzen syndrome) or a complex craniosynostosis and aged between 6 and 13 years.
排除标准
- •1. Children with syndromic craniosynostosis, whose parents master the Dutch language insufficiently to independently complete questionnaires;
- •2. Children familiar with one another syndromic abnormality.