Experiences of Parents/Partners of Individuals with Visible Skin Conditions: An Exploratory Study

Not Applicable

• Registration Number: CTRI/2022/02/040205
• Lead Sponsor: Preeti Kodancha

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Results First Posted: 1900-01-01
• Last Update Posted: 21 February 2022

Recruitment & Eligibility

• Status: ot Yet Recruiting
• Sex: Not specified
• Target Recruitment: 0

Inclusion Criteria

1. The individual must be a family caregiver of an individual with a Visible Difference (VD).

1.1. â??Family Caregiverâ?? refers to a parent (biological or adopted) or partner (in a committed marital relationship for > 6 months).

1.2. Individuals with a Visible Difference are identified as those who have a temporary or permanent physical appearance that is different to the societal norm.

1.2.1. The condition causing the difference in appearance (VD) may be acquired or congenital.

1.2.2. The difference in appearance (VD) may be caused due to one of the following aetiologies: skin conditions, congenital diseases, trauma and medical and/or surgical treatments

1.2.3. The difference in appearance (VD) must not be such that it restricts the physical movement (locomotion) of the individual or their basic self-care needs (bathing, dressing, etc.)

1.2.4. The difference in appearance must not be such that it requires immediate surgical intervention.

2. The individual must have English proficiency at a conversational level, and be able to read at a minimum of 4th-grade level.

Exclusion Criteria

1. The individual must not have (currently or in the past) a VD as defined above.

2. The individual must not currently be diagnosed with any severely limiting, debilitating or terminal illness.

3. The individual must not currently be diagnosed with any mental or behavioural disorder as per the ICD-10 (F00-F99) and must not be under pharmacological/psychological treatment for the same.

Study & Design

• Study Type: Observational
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
1. Scores of Kingston Caregiver Stress Rating Scales [measurement of caregiver stress] <br/ ><br>2. Scores of the Brief COPE Scale <br/ ><br>3. Interview transcripts from qualitative interviewTimepoint: Not Applicable - Cross-Sectional study

Secondary Outcome Measures

Name	Time	Method
oneTimepoint: Not Applicable