Exploring the role of an individualised healthcare transition document for young people with disabilities transitioning from Paediatric services to Primary Care.
Completed
- Conditions
- Physical and intellectual disabilityPublic Health - Health promotion/education
- Registration Number
- ACTRN12615001179527
- Lead Sponsor
- Emma Cluett
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Completed
- Sex
- All
- Target Recruitment
- 15
Inclusion Criteria
Young people and their families age 14 -18 years who have physical/intellectual/developmental disabiliites and are at or near transition time from paediatrics to general practice.
Exclusion Criteria
Isolated Autism Specturm Disorder without Intellectual disability.
Isolated ADHD without Intellectual Disability
Intepreter needed due to language barrier
Study & Design
- Study Type
- Interventional
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method Scores on pre validated clinical tool assessing transition readiness such as a modified UNC TR(x)ANSITION Scale developed and validated in 2012 by the University of North Carolina before and after the intervention and at the same time points for the control group. <br>The wording has been modified so it suits developmental/intellectual disability. <br>Ferris ME, Harward DH, Bickford K, Layton JB, Ferris MT, Hogan SL, Gipson DS, McCoy LP, Hooper SR (2012), A clinical tool to measure the components of health-care transition from paediatric care to adult care: the UNC TR(x)ANSITION scale, Renal Failure, 34(6), 744-53.<br><br>[1 month following administration of health care transition document.]
- Secondary Outcome Measures
Name Time Method umber of and reason for GP visits - from GP records (as per ethics approval)[6 months from the time of health care transition document administration];Composite secondary outcome:<br>feedback questionnaire for the GP, physician and family. This Questionnaire has been designed for this study and uses a mix of three option answers to obtain quantitative information and open questions. [1 month from the time of transition document administration ];Number of a reason for emergency department presentation - from hospital records as per ethics approval. [6 months from the time of transition document administration ]