Tailored to me: Evaluating the effectiveness and acceptability of behavioural assessments for people living with dementia

Not Applicable

Recruiting

• Conditions: major neurocognitive disorder; Neurological - Dementias

• Registration Number: ACTRN12624000226505
• Lead Sponsor: The University of Auckland

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Study Start: 2024-03-07
• Last Update Posted: 5 August 2024

Recruitment & Eligibility

• Status: Recruiting
• Sex: All
• Target Recruitment: 30

Inclusion Criteria

a) People living with mate wareware / dementia (independently diagnosed prior to the study).
b) A whanau member of each person with mate wareware
c) A professional carer / staff member for each person with mate wareware

Therefore, we will be working with triads of participants, comprising and a), b), and c).
It is possible that we may obtain consent from someone with dementia, but not a whanau member or professional carer. For each person with dementia, we require at least ONE of either b) or c) for inclusion in the study.
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We do not have an inclusion criterion for age, as we wish to include individuals with young-onset dementia because this is likely to be beneficial for these groups and future research. However, participants must be over 16 years old in order to be included as a legal adult in NZ.

We also do not have a criterion for specific diagnosis (e.g., type of dementia). We are not seeking to make broad generalisations about people with a specific diagnosis, but start to understand some of the factors that should be considered in adapting preference assessments. As such, and due to our small-N design approach, we are not seeking an homogenous sample.

Exclusion Criteria

None

Study & Design

• Study Type: Interventional
• Study Design: Not specified