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Clinical Trials/ISRCTN11966493
ISRCTN11966493
Completed
未知

Investigating the long-term outcomes of adult patients who underwent haematopoietic stem cell transplant for primary immunodeficiency during childhood

Royal Free Hospital0 sites135 target enrollmentOctober 10, 2016

Overview

Phase
未知
Intervention
Not specified
Conditions
Primary immunodeficiency
Sponsor
Royal Free Hospital
Enrollment
135
Status
Completed
Last Updated
3 years ago

Overview

Brief Summary

2022 Results article in https://pubmed.ncbi.nlm.nih.gov/35723794/ (added 18/11/2022) 2022 Results article in https://pubmed.ncbi.nlm.nih.gov/35579633/ (added 18/11/2022)

Registry
who.int
Start Date
October 10, 2016
End Date
September 4, 2019
Last Updated
3 years ago
Study Type
Observational
Sex
All

Investigators

Sponsor
Royal Free Hospital

Eligibility Criteria

Inclusion Criteria

  • 1\. All patients aged 16 and over who have had an HSCT at Great Ormond Street Hospital five years or more previously
  • 2\. Patients with learning difficulties, who have low levels of literacy or limited verbal communications skills will be supported by family members or carers to complete as much of the assessment pack as possible. All potential participants are known to the clinical team and, if able to communicate verbally, speak good English.

Exclusion Criteria

  • Participants not fulfilling the inclusion criteria

Outcomes

Primary Outcomes

Not specified

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