Safer Online Lives: Use of the Internet & Social Media by People With Intellectual Disabilities
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 429
- 试验地点
- 1
- 主要终点
- Online questionnaires - family carers, paid carers and safeguarding practitioners
研究概览
简要总结
The objective of this study is to explore the benefits of internet use for people with intellectual disabilities (ID), the risks they might come up against while online, the barriers people with ID might come across due to the 'digital divide', and the opportunities offered by being online. The views and experiences of family carers and/or paid carers as well as the views of other safeguarding practitioners will also be investigated.
详细描述
The most recent estimate is that more than three billion people are using the internet globally and people with ID are not an exception. Children and adults with ID increasingly live in homes with internet access and use the internet to get information about care, health, shopping, accessing social media sites, downloading or watching videos etc.
Benefits of the Internet: Compared to the general population, people with ID are often more likely to have narrow social networks consisting of either other people with disabilities, their families and/or their carers, usually feeling socially isolated and lonely. The internet can help people with ID form and maintain social relationships, but also gain access to expert guidance and information regarding care, health, employment etc.
Online Vulnerabilities: Previous research has identified a link between the use of internet and online risks for both people with and without ID. Such risks include abuse through online dating, being the victim of a fraud etc. Although anyone can be at risk of the above, it has been suggested that such risks are increased when individuals are particularly vulnerable to abuse. Research evidence has demonstrated that people with ID have several negative experiences online such as verbal abuse, sexual exploitation, mistreatment and violence. Furthermore, it has been shown that people with ID who have previous histories of abuse, isolation, and/or depression are more at risk of becoming victims of online sexual exploitation and abuse than others.
Acquiescence and acceptability are also very common in this population. Their desire to "fit in", be liked and willingness to please, might place people with ID in a vulnerable position. Likewise, studies have suggested that the type and severity of an ID, as well as age, could be influencing online risks. For example, people with lower IQ or with lack of social communication skills might have difficulties understanding other people's intentions, which makes them particularly vulnerable to online exploitation, abuse, theft and manipulation.
Existing Evidence: Given that only a very small amount of studies have looked at the internet use and risks for people with ID, there is no study looking at the benefits and opportunities of internet use. Therefore, there is a clear need to investigate this further. Also, all existing studies have focused on small numbers of participants leaving a clear gap in the literature. Only a small number of studies have taken into account family and paid carers' views. Even though the findings derived from these studies cannot be generalised, they act as a useful starting point to highlight the need for further exploration of internet use and online risks for people with ID.
研究设计
- 研究类型
- Observational
- 观察模型
- Case Only
- 时间视角
- Cross Sectional
入排标准
- 年龄范围
- 18 Years 至 —(Adult, Older Adult)
- 性别
- All
- 接受健康志愿者
- 是
入选标准
- •Adults with ID in England who use the internet.
- •Carers of people with ID who use the internet.
- •Safeguarding professionals working /have worked with people with ID that have been using/have used the internet.
- •All participants must be based in England
排除标准
- •Participants without an ID / carers of participants without an ID/ safeguarding professionals who have not worked with people with an ID.
- •Participants with ID who do not have internet access or chose to not use the internet.
- •Participants that do not have the capacity to consent according to the Mental Capacity Act (2005).
- •Participants who are not able to communicate verbally will be excluded from the interviews, observations and focus groups; however, they will be included in the questionnaires assessments.
- •Carers of people with ID who do not use the internet.
结局指标
主要结局
Online questionnaires - family carers, paid carers and safeguarding practitioners
时间窗: Through study completion, an average of 18 months
The questionnaire explores the same four key areas as for people with ID (benefits of using the internet for people with ID, barriers, risks and opportunities). A modified version of the questionnaire used in Chadwick et al.'s (2017) study will be used as the basis for the stakeholder's questionnaires.
Online questionnaires - individuals with ID
时间窗: Through study completion, an average of 18 months
A questionnaire will be used to investigate the online experiences of adults with ID. Four main key areas will be explored (benefits of using the internet, barriers, risks and opportunities). An easy read adapted version of the Facebook Intensity Scale (FIS; Ellison, Steinfield, \& Lampe, 2007) will be used to explore participants' social media usage.
次要结局
- A "think-aloud" observation(Through study completion, an average of 18 months)
- Focus groups(Through study completion, an average of 18 months)
- Observations(Through study completion, an average of 18 months)
- Qualitative interviews(Through study completion, an average of 18 months)
