Evaluation of palliative care extended packages at home

Not Applicable

Completed

• Conditions: Palliative Care; advanced cancer and other non cancer life limiting illness in advanced stage; Public Health - Health service research; Other - Conditions of unknown or disputed aetiology (such as chronic fatigue syndrome/myalgic encephalomyelitis)

• Registration Number: ACTRN12610001032044
• Lead Sponsor: South West Sydney Local Health District

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Results First Posted: 1900-01-01
• Study Start: 2010-11-24
• Last Update Posted: 13 January 2020

Recruitment & Eligibility

• Status: Completed
• Sex: All
• Target Recruitment: 60

Inclusion Criteria

1.Patient of the Palliative Care Team
2.General Practitioner currently involved in care at home or willing to be involved on discharge from hospital.
3. Patient lives with carer or will have a carer on discharge.
4. Ability to communicate sufficiently in English or have caregiver or family member who can communicate in English and assist them to complete assessments.
5. Informed consent.
6. Age greater than 18.
7. Also must meet one of the following criteria:
a. A patient with complex and unstable symptom management and high care needs whose clinician thinks admission/readmission to hospital may be prevented by the package.
b. A patient with complex and unstable symptom management and high care needs currently admitted in acute hospital /Palliative care unit who may not be discharged without comprehensive community services.
c. A patient wishing to receive end of life care (anticipated to be within 72 hours duration) at home.

Exclusion Criteria

not meeting above inclusion criteria

no other exclusion criteria

Study & Design

• Study Type: Interventional
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
number of days out of institutional care (determined from medical records of admissions to hospital and patient/caregiver report of date of admission to residential care)[28 days from baseline]

Secondary Outcome Measures

Name	Time	Method
Change in symptom score (from baseline) at end of package and at 28 days (Questionnaire)[28 days from baseline];survival[28 days from baseline];Functional status (questionnaire)[28 days from baseline];proportion of patients who die at home (questionnaire)[28 days from baseline];caregiver quality of life (questionnaire)[28 days from baseline];Modified Family Inventory of needs score (success of meeting caregiver needs)[28 days from baseline)]