Improving Native American Elder Access to and Use of Healthcare Through Effective Health System Navigation
Trial Snapshot
- Phase
- Not Applicable
- Status
- Completed
- Enrollment
- 16
- Locations
- 1
- Primary Endpoint
- User Evaluation Survey
Study Overview
Brief Summary
This community-driven study features a mixed-method, participatory design to examine help-seeking behavior and healthcare experiences of American Indian elders in New Mexico, in order to develop and evaluate a tailored intervention to enhance knowledge of, access to, and use of insurance and available services to reduce healthcare disparities. This study includes qualitative and quantitative interviews combined with concept mapping and focus groups with American Indian elders and other key stakeholders.
Detailed Description
This five-year project was developed by investigators from the Behavioral Health Research Center of the Southwest (BHRCS), a center of the Pacific Institute of Research and Evaluation (PIRE), the Health Committee of the New Mexico Indian Council on Aging (NMICoA), and the University of New Mexico (UNM). The project combines qualitative and quantitative interviews with concept-mapping (CM) techniques and focus groups to study insurance coverage, help-seeking behavior, and the healthcare experiences of American Indian Elders (AIEs) in New Mexico (NM). Practical knowledge grounded in the actual perspectives of AIEs and other key stakeholders may improve healthcare practices and policies for a population largely excluded from national and state discussions of health reform. The study data will also inform the adaptation and development of culturally tailored programming to enrich understanding and facilitate negotiation of a changing landscape of healthcare by AIEs. Our four specific aims are to:
- Assess how AIEs understand, access, maintain, and use insurance coverage.
- Characterize AIE help-seeking and healthcare experiences in dominant service delivery settings, i.e., Indian Health Service (IHS), tribally-run 638 facilities, and managed care programs.
- Identify and compare factors that affect AIE access to health care as perceived by multiple stakeholders, i.e., AIEs, outreach workers (OWs), healthcare staff and providers, public sector administrators, and tribal leaders.
- Develop and assess implementation feasibility of a structured intervention for OWs that promotes enhanced patient navigation, in addition to healthcare literacy, access, and usage among AIEs.
Study Design
- Study Type
- Observational
- Observational Model
- Case Only
- Time Perspective
- Prospective
Eligibility Criteria
- Ages
- 18 Years to — (Adult, Older Adult)
- Sex
- All
- Accepts Healthy Volunteers
- Yes
Inclusion Criteria
- •Working in a health and health insurance outreach
- •Routinely interacting with AIEs as part of their jobs
- •Primary service region includes target AIEs.
Exclusion Criteria
- •Not Routinely interacting with AIEs as part of their jobs
- •Not willing to be trained in or use the Seasons of Care app
- •American Indian Elders (AIEs) Inclusion
- •Identifying as AI
- •Able to read in English
- •Able to consent and complete study procedures
- •Interacted with Navigator
- •Exclusion ● Individuals who cannot read in English or who have not interacted with a pilot test Navigator will not be eligible to participate
- •Healthcare Staff/providers Inclusion
- •Individuals who have been in contact with a pilot test Navigator
- •Work in a healthcare facility that serves AIEs in one of our 4 regions
- •● Individuals who have not interacted with a pilot test Navigator or do not work in a healthcare facility serving our primary population, will not be eligible to participate
Outcomes
Primary Outcomes
User Evaluation Survey
Time Frame: Once at the end of P2 (Month 8 of 8)
A semi-structured, in-person interview (or focus group, depending on availability) with AIEs and healthcare providers who interacted with a navigator using the Seasons of Care app to assess experiences with, and effects of, the Seasons of Care app; suggestions to improve the Seasons of Care app
Secondary Outcomes
- Navigator Pre- and Post-Evaluation Interview(Month 1 and 4 (of 8) for P1 Navigators; Month 5 and 8 (of 8) for P2 Navigators)
Investigators
Cathleen Willging
Senior Research Scientist/Center Director
Pacific Institute for Research and Evaluation