The Effects of Pulmonary Hypertension Web-Based Health Care Program on Symptom Management, Social Support, Activity Tolerance, and Quality of Life in Patients With Pulmonary Hypertension.
Overview
- Phase
- Not Applicable
- Intervention
- Not specified
- Conditions
- Web-based Health Care Program
- Sponsor
- National Defense Medical Center, Taiwan
- Enrollment
- 100
- Locations
- 1
- Primary Endpoint
- Pulmonary Arterial Hypertension Symptom
- Status
- Recruiting
- Last Updated
- 2 years ago
Overview
Brief Summary
Pulmonary arterial hypertension (PAH) is a chronic disease characterized by an elevation in pulmonary artery pressures and pulmonary vascular resistance. The condition most often is rarely detected, and patients frequently suffer symptoms for several years before being appropriately diagnosed. Patients with PH suffer from several symptoms, such as exertional dyspnea, fatigue, weakness, chest pain, fainting...et al. Pulmonary hypertension is an incurable and progressive disease with complex symptoms and treatments. Patients must learn to deal with their unpredictable future and manage the complex treatments associated with severe adverse effects and need significant changes in lifestyle.
Therefore, it is important to assist patients to develop the ability of symptom management.
Investigators
Miao-Yi Chen
Principal Investigator
National Defense Medical Center, Taiwan
Eligibility Criteria
Inclusion Criteria
- •At least 20 years old, diagnosed by clinical specialists as patients with pulmonary hypertension (Group1 and Group 4)
- •Clear consciousness, able to communicate in Mandarin and Taiwanese, with normal hearing
- •Those who have internet or mobile internet at home
- •Adults without mental illness
- •No alcohol or drug abusers.
Exclusion Criteria
- •critical disease
Outcomes
Primary Outcomes
Pulmonary Arterial Hypertension Symptom
Time Frame: Change from Baseline pulmonary Arterial Hypertension Symptom at six months
Pulmonary Arterial Hypertension Symptom Interference Scale, PAHSS, The 10-point Likert scale higher scores mean a worse outcome.
Secondary Outcomes
- Pulmonary Hypertension Quality of life(Change from Baseline quality of life at six months)
- Activity ability(Change from Baseline activity ability at six months)
- Social support(Change from Baseline social support at six months)