An Exploratory Study of Caregiver Burden Among Family Caregivers of Patients With Cancer
- Conditions
- CaregiversCancer
- Interventions
- Other: Questionnaire
- Registration Number
- NCT03069105
- Lead Sponsor
- Saint John's Cancer Institute
- Brief Summary
This study will look at caregiver burden and the coping behavior of caregivers of patients with cancer. Through this study, the investigators will identify the relationship between cognitive dysfunction (measured as a proxy rating by the caregiver), resilience, social support, cognitive appraisal, coping behavior, and caregiver burden, anxiety, and depression among family caregivers of patients with cancer.
- Detailed Description
The goal of this study is to explore caregiver burden and the coping behavior of caregivers of patients with cancer. It has been documented that non-professional caregivers and long-term care providers to patients with cancer receive little preparation, information, or support to perform their vital role. Through this study, the investigators will identify the relationship between cognitive dysfunction, resilience, social support, cognitive appraisal, coping behavior, and caregiver burden, anxiety, and depression among family caregivers of patients with cancer. The findings of this study will direct future intervention studies to reduce caregiver burden and improve outcomes for the many individuals caring for family members with cancer.
Recruitment & Eligibility
- Status
- COMPLETED
- Sex
- All
- Target Recruitment
- 49
- Age ≥ 18 years
- Self-identified primary caregiver of patients with cancer
- Co-residence with the patient
- Providing a minimum of 4 hours of direct care for at least 3 days per week
- Able to speak, read, and understand English
- Willing to participate in completion of surveys
- Professional or paid caregivers
Study & Design
- Study Type
- OBSERVATIONAL
- Study Design
- Not specified
- Arm && Interventions
Group Intervention Description Family caregivers Questionnaire The sample for this study will consist of caregivers of patients with cancer. Eligible subjects who agrees to participate in the research study and sign the consent form will participate by completing paper and pencil or electronic questionnaires.
- Primary Outcome Measures
Name Time Method Changes in Caregiver Burden Score [Caregiver Reaction Assessment (CRA)] 1 year Relation between caregiver burden subscale scores and caregiver resilience, social support, and coping
- Secondary Outcome Measures
Name Time Method Changes in Anxiety and Depression Score [Hospital Anxiety and Depression Scale (HADS)] 1 year Relation between caregiver anxiety and depression score and caregiver resilience, social support, and coping
Trial Locations
- Locations (4)
Providence Saint Joseph Medical Center
🇺🇸Burbank, California, United States
John Wayne Cancer Institute at Providence Saint John's Health Center
🇺🇸Santa Monica, California, United States
Providence Holy Cross Medical Center
🇺🇸Mission Hills, California, United States
EndBrainCancer Initiative/Chris Elliott Fund
🇺🇸Redmond, Washington, United States