Myasthenia Gravis Foundation of America Global MG Patient Registry
- Conditions
- Myasthaenia GravisMyastheniaMyasthenia Gravis Associated with ThymomaMyasthenia Gravis CrisisMyasthenia Gravis ExacerbationsMyasthenia Gravis GeneralisedMyasthenia Gravis with Exacerbation (Disorder)Myasthenia Gravis, Adult FormMyasthenia Gravis, GeneralizedMyasthenia Gravis, Ocular
- Registration Number
- NCT06617741
- Lead Sponsor
- Myasthenia Gravis Foundation of America
- Brief Summary
The goal of this observational study is to learn about the experiences of people living with Myasthenia Gravis (MG) in the United States. The main questions it aims to answer are:
* How and when are people with MG diagnosed?
* What are the most common symptoms associated with MG?
* What treatments are being used to treat MG?
* What are the impacts of MG on activities of daily living, employment and quality of life?
* What are the experiences with exacerbation, hospitalization and healthcare access for people with MG? Participants will answer a survey to enroll in the study, and be invited to fill out an update survey twice a year.
- Detailed Description
This is a longitudinal, observational, patient reported registry.
Recruitment & Eligibility
- Status
- RECRUITING
- Sex
- All
- Target Recruitment
- 3800
- age over 18
- positive MG diagnosis
- age under 18
- misdiagnosed with MG
Study & Design
- Study Type
- OBSERVATIONAL
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method Diagnosis of MG At enrollment Whether the patient has a confirmed MG diagnosis.
- Secondary Outcome Measures
Name Time Method
Trial Locations
- Locations (1)
Myasthenia Gravis Foundation of America
🇺🇸Westborough, Massachusetts, United States