Implications of a Paediatrician-psychologist Tandem for Sickle Cell Disease Care and Impact on Cognitive Functioning
Overview
- Phase
- Not Applicable
- Intervention
- Not specified
- Conditions
- Sickle Cell Disease
- Sponsor
- Fondation Ophtalmologique Adolphe de Rothschild
- Enrollment
- 155
- Primary Endpoint
- Rey-Osterrieth complex figure test scores (ROCF recall scores)
- Status
- Completed
- Last Updated
- 4 years ago
Overview
Brief Summary
Sickle cell disease (SCD) necessitates a paediatric treatment plan that considers the influence of psychological, family and intercultural factors. At the Louis-Mourier Hospital (APHP) in Colombes, France, a paediatric-psychological partnership where a clinical psychologist accompanies the paediatrician at programmed consultations was introduced.
The psychological repercussions of SCD were assessed among children and their parents treated in Colombes and in two other paediatric units without a paediatric-psychological partnership.
Investigators
Eligibility Criteria
Inclusion Criteria
- •Children under 18 years old
- •Major form of SCD (SS, SC, Sβ° thal, Sβ+ thal) diagnosed by electrophoresis
Exclusion Criteria
- •Child or parent residing in France less than 6 months
- •Having received SCD treatment in more than one centre
Outcomes
Primary Outcomes
Rey-Osterrieth complex figure test scores (ROCF recall scores)
Time Frame: 1 day
The Rey-Osterrieth complex figure test (ROCF) is a neuropsychological assessment in which patients are asked to reproduce a complicated line drawing, first by copying it freehand (recognition), and then drawing from memory (recall). Scoring of drawings is based on the widely used 36-point scoring system (0 being the worst score and 36 the best).