The Effect of Transition to Adulthood Education Program on Family Quality of Life and Perceived Stress Level

Not Applicable

Completed

• Conditions: Intellectual Disability
• Interventions: Other: Transition to Adulthood Education Program

• Registration Number: NCT05587647
• Lead Sponsor: Koç University

Brief Summary

Negative emotions experienced during life processes and the burden of caregiving affect the quality of life of parents. It has been found that parents who care for their children with intellectual disability (ID) for a long time have difficulties in coping with stress and their quality of life is adversely affected. However, families play a key role in maintaining the care of their children with ID, so it is very important that parents are supported in the matters they need.

Detailed Description

Mothers are generally the people who take on a large part of the burden of care for their children with intellectual disability (ID) in the family and are most affected by the negativities brought by the conditions. Providing support to mothers for the care and future planning of their children who have just passed into adult life and for their future planning is important both in terms of maintaining family well-being and creating positive effects in the lives of individuals with mental disabilities.

With this study, it is aimed to increase the quality of life of mothers and to reduce perceived stress levels with the training (YEGEP) modules to be given for the changing care needs of individuals with ID who have reached adulthood or are in transition. In addition, it is expected that the health risks of young adults with ID will be determined at an early stage, and their health will be improved and protected.

Study Timeline

• Study First Submitted: 2022-10-17
• Study First Submitted QC: 2022-10-17
• Study First Posted: 2022-10-20
• Study Start: 2023-01-01
• Primary Completion: 2023-08-01
• Study Completion: 2023-09-01
• Status Verified: 2024-01
• Last Update Submitted: 2024-01-10
• Last Update Posted: 2024-01-11

Recruitment & Eligibility

• Status: COMPLETED
• Sex: Female
• Target Recruitment: 33

Inclusion Criteria

• Whose child is registered with the disability center,
• Have a young adult child between the ages of 20 and 35 with moderate and severe mental disabilities,
• Speaking Turkish and literate Turkish,
• Not visually and speech impaired,
• Mothers who volunteered to participate in the study will be included.

Exclusion Criteria

• Mothers who did not volunteer to participate in the study and were illiterate in Turkish were not included in the study.

Study & Design

• Study Type: INTERVENTIONAL
• Study Design: PARALLEL

Arm && Interventions

Group	Intervention	Description
Experimental: YEGEP group/Intervention	Transition to Adulthood Education Program	Mothers will be informed about the program and invited to work. In the phone call, information will be given about the purpose, duration, requirements and volunteering of the study. The planned training schedule will be applied to these mothers.

Primary Outcome Measures

Name	Time	Method
Perceived Stress Scale	Immediately afteImmediately after the training is completed (average of 5 minutes), mothers will be asked to complete this scale.r the training is completed (average of 5 minutes), mothers will be asked to complete this scale.	The scale developed by Cohen, Kamarck, and Mermelstein (1983) to measure how individuals evaluate stressful life events as unpredictable, uncontrollable and difficult to cope with in the last month consists of 10 items.
Personal Information Form	All mothers will be asked to fill in 1 hour before the training.	The personal information form consists of various socio-demographic questions about the participant and the mentally handicapped child, such as gender, age and educational status.
Beach Center Family Quality of Life (BCFQOL) Scale	One month after the training is completed, mothers will be asked to complete this scale to evaluate the effectiveness of the training.	The scale, developed by University of Kansas Beach Center on Family and Disability (2006) (Beach Center on Disability at the University of Kansas in partnership with families, 2006) and adapted into Turkish by Meral et al. (2012), consists of 25 questions, five sub-dimensions and 5 It is a data collection tool consisting of likert-type responses. The scale aims to determine the quality of life of families with children with special needs.

Trial Locations

Locations (1)

Koc University; 🇹🇷 Istanbul, Turkey