The Effect of Transition to Adulthood Education Program Given to Mothers of Children With Intellectual Disability on Family Quality of Life and Perceived Stress Level
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 发起方
- 入组人数
- 33
- 试验地点
- 2
- 主要终点
- Perceived Stress Scale
研究概览
简要总结
Negative emotions experienced during life processes and the burden of caregiving affect the quality of life of parents. It has been found that parents who care for their children with intellectual disability (ID) for a long time have difficulties in coping with stress and their quality of life is adversely affected. However, families play a key role in maintaining the care of their children with ID, so it is very important that parents are supported in the matters they need.
详细描述
Mothers are generally the people who take on a large part of the burden of care for their children with intellectual disability (ID) in the family and are most affected by the negativities brought by the conditions. Providing support to mothers for the care and future planning of their children who have just passed into adult life and for their future planning is important both in terms of maintaining family well-being and creating positive effects in the lives of individuals with mental disabilities.
With this study, it is aimed to increase the quality of life of mothers and to reduce perceived stress levels with the training (YEGEP) modules to be given for the changing care needs of individuals with ID who have reached adulthood or are in transition. In addition, it is expected that the health risks of young adults with ID will be determined at an early stage, and their health will be improved and protected.
研究设计
- 研究类型
- Interventional
- 分配方式
- Randomized
- 干预模型
- Parallel
- 主要目的
- Supportive Care
- 盲法
- Single (Outcomes Assessor)
入排标准
- 性别
- Female
- 接受健康志愿者
- 是
入选标准
- •Whose child is registered with the disability center,
- •Have a young adult child between the ages of 20 and 35 with moderate and severe mental disabilities,
- •Speaking Turkish and literate Turkish,
- •Not visually and speech impaired,
- •Mothers who volunteered to participate in the study will be included.
排除标准
- •Mothers who did not volunteer to participate in the study and were illiterate in Turkish were not included in the study.
结局指标
主要结局
Perceived Stress Scale
时间窗: Immediately afteImmediately after the training is completed (average of 5 minutes), mothers will be asked to complete this scale.r the training is completed (average of 5 minutes), mothers will be asked to complete this scale.
The scale developed by Cohen, Kamarck, and Mermelstein (1983) to measure how individuals evaluate stressful life events as unpredictable, uncontrollable and difficult to cope with in the last month consists of 10 items.
Personal Information Form
时间窗: All mothers will be asked to fill in 1 hour before the training.
The personal information form consists of various socio-demographic questions about the participant and the mentally handicapped child, such as gender, age and educational status.
Beach Center Family Quality of Life (BCFQOL) Scale
时间窗: One month after the training is completed, mothers will be asked to complete this scale to evaluate the effectiveness of the training.
The scale, developed by University of Kansas Beach Center on Family and Disability (2006) (Beach Center on Disability at the University of Kansas in partnership with families, 2006) and adapted into Turkish by Meral et al. (2012), consists of 25 questions, five sub-dimensions and 5 It is a data collection tool consisting of likert-type responses. The scale aims to determine the quality of life of families with children with special needs.
次要结局
未报告次要终点
研究者
Eysan Hanzade Umac
Teaching and Research Assistant
Koç University