Use of a Family Navigator in Families With Children Newly Diagnosed With Autism Spectrum Disorder
Overview
- Phase
- N/A
- Intervention
- Not specified
- Conditions
- Autistic Disorder
- Sponsor
- Boston Medical Center
- Enrollment
- 192
- Locations
- 1
- Primary Endpoint
- Hours of Services
- Status
- Completed
- Last Updated
- 10 years ago
Overview
Brief Summary
The purpose of this study is to see whether or not Family Navigators, who 1 ) help families after their child is diagnosed with autism and help them get autism specific services for their child 2) help families identify barriers to obtaining these services and 3) help families problem solve to overcome these barrier, are helpful to parents of a child newly diagnosed with an Autism Spectrum Disorder.
Investigators
Marilyn Augustyn
BMC Faculty
Boston Medical Center
Eligibility Criteria
Inclusion Criteria
- •Child with a new confirmed diagnosis of Autism Spectrum Disorder
- •Child is under 8 years of age
- •Parent is the mother, father and/or legal guardian of the child and identifies themselves as the primary caregiver
- •Primary caregiver speaks English, Spanish, Haitian Creole, Somali, Vietnamese, Portuguese or Chinese
Exclusion Criteria
- •Parent or legal guardian has psychosis
- •Parent or legal guardian endorses suicidal ideation
- •Parent or legal guardian actively using illicit drugs
- •Parent or legal guardian expected to leave area within 6 months
Outcomes
Primary Outcomes
Hours of Services
Time Frame: 6 months after enrollment
Mean number of autism-specific service hours received per week
Receipt of adequate services
Time Frame: 6 months after enrollment
As defined by 25 hours/week
Time to Receipt of Services
Time Frame: 6 months after enrollment
Difference between the date of the IEP/IFPS and date the child first received services
Secondary Outcomes
- Family Psychological Functioning(Baseline)