Prevalence and care requirements of psychological comorbidities and pain in patients with generalised symptomatic hypermobility in the context of hypermobility spectrum disorder (HSD)/ Ehlers-Danlos syndromes (EDS).
- Conditions
- Q79.6Ehlers-Danlos syndrome
- Registration Number
- DRKS00024554
- Lead Sponsor
- niversitätskliikum KölnKlinik für Dermatologie und Venerologie
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Complete
- Sex
- All
- Target Recruitment
- 99
Inclusion Criteria
Patients with generalised symptomatic hypermobility diagnosed with Hypermobility Spectrum Disorder or the following subtypes of Ehlers-Danlos syndromes (hypermobile EDS, classical EDS, classical-like EDS).
- Age: 18 to 75 years;
- sufficient knowledge of the German language
- Signed informed consent.
Exclusion Criteria
- Patients with non-classified connective tissue disorders or other Ehlers-Danlos subtypes.
- Persons under 18 and over 75 years of age
- Persons with cognitive impairments and/or insufficient knowledge of the German language as well as insufficient reading skills
Study & Design
- Study Type
- observational
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method How high is the point prevalence for comorbid mental disorders and chronic pain in patients diagnosed with HSD or EDS (hEDS, kEDS, and clEDS) at the EDS specialty consultation centre at Cologne University Hospital?
- Secondary Outcome Measures
Name Time Method A) What is the current state of medical care for patients with generalized symptomatic hypermobility?<br>