Understanding and Mitigating the Impact of the COVID-19 Pandemic on Children, Youth, and Families Living With an Eating Disorder: A National Implementation Study of a Virtual Parent-Led Peer Support Intervention
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 120
- 试验地点
- 6
- 主要终点
- Parent, youth, clinician, and administrator perspectives on factors important for implementing and sustaining virtual parent-led peer support groups
研究概览
简要总结
During the COVID-19 pandemic, Canada has experienced a surge in new pediatric eating disorder cases and hospitalizations and long treatment waitlists, with parents experiencing anxiety due to a lack of support. As it has not been rigorously studied, there is an urgent need to understand and mitigate the impact of the COVID-19 pandemic on children, youth, and families living with eating disorders across Canada. The investigator's proposed research has two goals. First, the investigators plan to understand the impact of the COVID-19 pandemic faced by this population throughout the country, as well as describe stakeholder views on virtual parent-led peer support groups. Given the increased burden faced by parents of children with eating disorders during the COVID-19 pandemic, the second goal is to study whether the national implementation of virtual parent-led peer support groups helps to mitigate the impact of the pandemic among affected parents. The investigators will use qualitative semi-structured interviews to gather an understanding of the impact of the pandemic on relevant stakeholders across the country. At the same time, the investigators will evaluate the feasibility and acceptability of the implementation of virtual parent-led peer support groups in several regions of Canada by examining parent and parent peer support provider experiences.
研究设计
- 研究类型
- Interventional
- 分配方式
- Na
- 干预模型
- Single Group
- 主要目的
- Health Services Research
- 盲法
- None
入排标准
- 年龄范围
- 12 Years 至 100 Years（Child, Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Have the capacity to write, speak and understand English
- •Have access to a computer and internet
- •Among parents enrolled in the virtual parent-led peer support groups, they must have a child or adolescent (<18 years of age) diagnosed with an eating disorder
- •Among youth and parents of youth with an eating disorder in the qualitative interviews component of the study, they/their child must either be on a waiting list for eating disorder treatment, actively in treatment, or post-treatment; the youth must be <18 years of age and the parent must have a child <18 years of age
- •Among clinician/administrators in the qualitative interviews component of the study, they must work within pediatric eating disorder programs or lifespan eating disorder programs.
排除标准
- •No lived or professional experience in the field of eating disorders
- •Don't have the capacity to write, speak and understand English
- •Don't have access to the internet/computer
研究组 & 干预措施
Stakeholder Perspectives and Virtual Parent-Led Peer Support Group
Qualitative interviews regarding the impact of COVID-19 will be conducted with youth who have an eating disorder (ED), parents of youth who have an ED, ED clinicians and ED program administrators, as well as get their perspectives on parent-led peer support groups. Three parent-led peer support groups will be started, including psychoeducation in a virtual group setting for parents who have a child or adolescent with an eating disorder.
干预措施: Support Group for Caregivers (Behavioral)
结局指标
主要结局
Parent, youth, clinician, and administrator perspectives on factors important for implementing and sustaining virtual parent-led peer support groups
时间窗: Baseline to 6 months later
Perspectives qualitatively measured by semi-structured individual interviews with participants with lived experience or expertise in pediatric eating disorders during the COVID-19 pandemic.
Parent, youth, clinician, and administrator perspectives on and experiences with the COVID-19 pandemic and children, youth, and families with eating disorders
时间窗: Baseline to 6 months later
Perspectives and experiences qualitatively measured by semi-structured individual interviews with participants with lived experience or expertise in pediatric eating disorders during the COVID-19 pandemic.
Parent, youth, clinician, and administrator perspectives on virtual parent-led peer support groups to help mitigate the negative effects of COVID-19 on children, youth, and families with eating disorders across Canada
时间窗: Baseline to 6 months later
Perspectives qualitatively measured by semi-structured individual interviews with participants with lived experience or expertise in pediatric eating disorders during the COVID-19 pandemic.
次要结局
- Change in self-reported needs as a parent of a child with an eating disorder(Baseline and 3 months later)
- Parent Peer Support Providers' Change in Attitudes about Evidence Based Practice(Baseline and 6 months later)
- Number of support groups each parent attends (Attendance Rate)(3 months after baseline)
- Parent Peer Support Providers' Self-Reported Fidelity to Peer Support(Baseline and 6 months later)
- Change in number of parents who remain in the support group (Retention Rate)(Baseline and 3 months later)
- Parent Peer Support Providers' Change in Readiness(Baseline and 6 months later)
- Parent Peer Support Providers' Change in Confidence related to the Intervention(Baseline and 6 months later)
- Change in self-reported parental burden(Baseline and 3 months later)
- Change in self-reported parental self efficacy and collaboration(Baseline and 3 months later)
研究者
Jennifer Couturier
Principal Investigator, Medical Co-Director, Associate Professor
McMaster University