Compassionate Communities Neighbourhood Program

Not Applicable

• Conditions: Aging; Chronic Disease
• Interventions: Behavioral: Quality of Life Assessment; Behavioral: Neighbourhood exchange

• Registration Number: NCT03634163
• Lead Sponsor: McMaster University

Brief Summary

This study will evaluate a Compassionate Communities-based intervention aimed at reducing social isolation by mobilizing individuals to act on their health and social needs individually, and in collaboration with fellow members of their community. The intervention program includes facilitated building of neighbourhood networks (member benefits include access to practical help, the opportunity to develop meaningful relationships, and community mobilization), and coaching support to work on individualized goal setting and more detailed navigation support and planning.

Detailed Description

The Compassionate Communities intervention is catalyzed by professional facilitators who visit communities with high concentrations of elderly and vulnerable residents, and recruit those who are interested in a project to identify their own health and social needs, assets and priorities; to collectively work to support each other in achieving these; and to implement a neighbourhood exchange to more easily match offers of help to people who need help. The mobilization work starts with the facilitator, who is employed by a community or social service organization, but increasingly draws on the energies of the mobilized initial participants as volunteers who conduct further community outreach in their community, attracting and mobilizing other residents, peers, and neighbouring resources in the work. Participants also plan and implement a broad range of activities identified by the residents as their priorities for neighbourhood building. Participants and their caregivers have the option of receiving more in-depth 1:1 coaching support to work on individualized goal setting, more detailed navigation support or advanced care planning following the sessions.

Basic Information
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Recruitment & Eligibility
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Study & Design
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Trial Locations

Study Timeline

• Study First Submitted: 2018-07-05
• Status Verified: 2018-08
• Study First Submitted QC: 2018-08-14
• Last Update Submitted: 2018-08-14
• Study First Posted: 2018-08-16
• Last Update Posted: 2018-08-16
• Study Start: 2018-09-01
• Primary Completion: 2020-03-31
• Study Completion: 2021-03-31

Recruitment & Eligibility

• Status: UNKNOWN
• Sex: All
• Target Recruitment: 1000

Inclusion Criteria

• Seniors (65 years of age and older)
• people with disabilities
• caregivers of seniors or people with disabilities
• residing in identified buildings/ neighbourhoods where the WECCC Compassionate Communities Neighbourhood program is being launched
• able to communicate in English or interpreter can be arranged

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Exclusion Criteria

• not able to communicate in English and interpreter cannot be arranged

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Study & Design

• Study Type: INTERVENTIONAL
• Study Design: PARALLEL

Arm && Interventions

Group	Intervention	Description
Delayed	Quality of Life Assessment	Quality of Life Assessment
Immediate	Neighbourhood exchange	Quality of Life Assessment plus facilitated implementation of neighbourhood exchange and personal care support
Immediate	Quality of Life Assessment	Quality of Life Assessment plus facilitated implementation of neighbourhood exchange and personal care support

Primary Outcome Measures

Name	Time	Method
Perception of social disconnectedness	change from baseline at 7 months	Social disconnectedness scale; 8-item validated scale (Cornwell and Waite, 2008), higher scores indicate greater social disconnectedness

Secondary Outcome Measures

Name	Time	Method
Perception of personal well-being	change from baseline at 7 months	Assessed by Personal Well-Being Index (PWI); 8-item scale (Personal well-being index 5th edition, 2013). Higher scores indicate greater well-being
Attainment of personal goals	Change from baseline at 7 months	Assessed by Goal Attainment Scaling (GAS) instrument, measured on 5-point scale for each goal identified (Hurn et al, 2006), higher score indicates greater goal attainment
Health related quality of life	change from baseline at 7 months	Assessed by Euroqol 5 dimension 5 level (5D-5L) scale; 5 levels of response for each of 5 items, score is converted to a single index, standardized to scale of 0 to 1, 1 being perfect health
Perceived loneliness scale	change from baseline at 7 months	Assessed by Perceived loneliness scale; 9-item validated scale (Cornwell and Waite, 2009). Higher scores indicated greater perceived isolation
Perceived provisions of social relationships	change from baseline at 7 months	Social provisions scale; 10-item validated scale consisting of 5 subscales (Caron, 2013). The SPS 10 measures the perception of social support and consists of 10 items expressed as statements with responses coded on a 4-point scale from strongly disagree (= 1) to strongly agree (= 4). The total SPS-10 score is formed by the summation of raw scores, with high score indicating a higher degree of social provisions (maximum score of 40)
Number of emergency department visits	7 months	Number of emergency department visits measured from health administrative data
Number of hospital admissions	7 months	Number of hospital admissions measured from health administrative data

Trial Locations

Locations (1)

Hospice of Windsor-Essex; 🇨🇦 Windsor, Ontario, Canada