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A Phase 3 Study of Danicopan (ALXN2040) as Add-on Therapy to a C5 Inhibitor (Eculizumab or Ravulizumab) in Patients with Paroxysmal Nocturnal Hemoglobinuria Who Have Clinically Evident Extravascular Hemolysis (EVH)

Phase 3
Completed
Conditions
Paroxysmal Nocturnal Hemoglobinuria
PNH
10038158
Registration Number
NL-OMON55171
Lead Sponsor
Alexion Pharmaceuticals
Brief Summary

Not available

Detailed Description

Not available

Recruitment & Eligibility

Status
Completed
Sex
Not specified
Target Recruitment
5
Inclusion Criteria

* Diagnosis of PNH
* Clinically Evident EVH defined by:
- Anemia (Hgb *9.5 gram/deciliter) with absolute reticulocyte count * 120 x
10^9/liter.
- At least 1 packed red blood cell or whole blood transfusion within 6 months
prior to the start of the study.
* Receiving a C5 inhibitor for at least 6 months prior to Day 1
* Platelet count *30,000/microliters (*L)
* Absolute neutrophil counts *750/*L.
* Documentation of/or willingness to receive vaccinations and prophylactic
antibiotics as required.

Exclusion Criteria

* History of a major organ transplant or hematopoietic stem cell
transplantation (HSCT).
* Known aplastic anemia or other bone marrow failure that requires HSCT or
other therapies including anti-thymocyte globulin and/or immunosuppressants.
* Known or suspected complement deficiency.
* Laboratory abnormalities at screening, including:
- Alanine aminotransferase >2 x ULN.
- Direct bilirubin >2 x ULN (unless due to EVH or documented Gilbert's Syndrome.
* Current evidence of biliary cholestasis.
* Estimated glomerular filtration rate <30 milliliters/minute/1.73 meter
squared and/or are on dialysis.
* Evidence of human immunodeficiency virus, hepatitis B, or active hepatitis C
infection at screening.

Study & Design

Study Type
Interventional
Study Design
Not specified
Primary Outcome Measures
NameTimeMethod
<p>Change From Baseline In Hemoglobin (Hgb)</p><br>
Secondary Outcome Measures
NameTimeMethod
<p>* Percentage Of Participants With Transfusion Avoidance<br /><br>* Change From Baseline In Functional Assessment Of Chronic Illness Therapy<br /><br>(FACIT) Fatigue Scores; Scoring 0-52<br /><br>* Change From Baseline In Absolute Reticulocyte Count</p><br>
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