MedPath

Healthy Living for You

Not Applicable
Completed
Conditions
Diabetes
Interventions
Behavioral: Culturally tailored HLWD
Registration Number
NCT05917093
Lead Sponsor
University of Wisconsin, Madison
Brief Summary

The goal of the study is to conduct the Healthy Living with Diabetes (HLWD) program among Black individuals in a culturally appropriate manner. This study will involve 24-30 participants in total. Participants can expect to be on study for approximately 6 months.

Detailed Description

The study objectives are to recruit and empower Black Healthy Living with Diabetes (HLWD) facilitators to deliver culturally tailored HLWD content and pilot the culturally tailored HLWD program, using the RE-AIM framework and Proctor implementation outcomes to gather preliminary implementation data. The study team will partner with stakeholders and community organizations serving Black adults, including Grace Fellowship Church and YMCA of Metropolitan Milwaukee. The central hypothesis is that the cultural tailoring of HLWD will increase the reach, adoption, implementation, and effectiveness of HLWD among Black adults.

The study aims are:

1. Co-design a culturally relevant approach to the recruitment and training of Black HLWD facilitators. The study team will partner with a stakeholder advisory board including:

* (1) Black adults with diabetes (prior HLWD participants)

* (2) Black community leaders

* (3) current Black HLWD facilitators, and

* (4) current HLWD program providers (organizational leaders in settings delivering HLWD to Black adults)

to co-design: (a) an asset-based approach to recruiting Black facilitators and (b) an adjunct training that empowers the facilitator to use a culturally relevant approach to deliver HLWD content to Black adults.

2. Implement the culturally tailored HLWD program among Black adults. Using a mixed methods design, the investigators will assess recruitment/retention rates among Black adults (reach), feasibility of adoption among facilitators and program providers (adoption), participant adherence, fidelity of enactment and acceptability, fidelity of program delivery by facilitators (implementation), and pre-post impact on diabetes outcomes (effectiveness).

Recruitment & Eligibility

Status
COMPLETED
Sex
All
Target Recruitment
32
Inclusion Criteria
  • self-identify as Black/African American
  • have type 1 diabetes, type 2 diabetes, gestational diabetes, or pre-diabetes
Exclusion Criteria

Study & Design

Study Type
INTERVENTIONAL
Study Design
SINGLE_GROUP
Arm && Interventions
GroupInterventionDescription
Culturally tailored HLWDCulturally tailored HLWD-
Primary Outcome Measures
NameTimeMethod
Recruitment: Number of Miles Participants are Willing to Travel for a Workshopup to 6 months
Retention: Proportion of Participants who Completed the HLWD Workshop and Final Assessmentsup to 6 months
Summary of Reasons for Declining to Participate Reported by Participant Countup to 6 months

Qualitative measure where reasons will be coded and grouped into themes for reporting.

Recruitment: Number of HLWD Participants Enrolled in a HLWD Workshop vs Invited to Enrollup to 6 months
Summary of Reasons for Agreeing to Participate Reported by Participant Countup to 6 months

Qualitative measure where reasons will be coded and grouped into themes for reporting.

Retention Rate during a 6-week SessionUp to 6 weeks
Summary of Reasons for Dropping Out by Participant Countup to 6 months

Qualitative measure where reasons will be coded and grouped into themes for reporting.

Secondary Outcome Measures
NameTimeMethod
Effectiveness: Diabetes Empowerment Scale - Short Form Self-Efficacy for Adherence to Medication Use ScaleBaseline, 6 weeks, 6 months

The Diabetes Empowerment Scale is a 8-item survey each scored on a 5 point likert scale. This scale assesses the patients' perceived ability to obtain social support, manage stress, be self-motivating and make diabetes-related decisions. A total range of score is from 0-40. Higher score indicate higher diabetes empowerment.

Implementation: Participant Satisfaction Ratingsup to 6 weeks

Participant Satisfaction Ratings are scored from 1-5, with higher scores indicating higher satisfaction.

Facilitator Evaluation Reported in binary Yes / Noup to 6 months

Facilitators will be asked if they satisfied with the training and experience of being a facilitator? Would they consider leading another program? Would they recommend being a facilitator?

Implementation: Summary of Diabetes Self-Care Activities (SDSCA)up to 6 weeks

The SDSCA is a 7-item survey with each item scored from 0-7. The total possible range of scores is from 0-112, with higher scores indicating better self-care.

Effectiveness: Self-Reported Health StatusBaseline, 6 weeks, 6 months

Participants self-reported their overall health on a scale of by selecting one of the 5 options: poor, fair, good , very good, or excellent. Scoring is from 1-5 with higher scores indicating poor health.

Facilitator Adoption: Number Agreeing to be a Facilitator divided by the Number Approachedup to 6 months
Effectiveness: Patient's Perceived Involvement in Care Scale (PICS)Baseline, 6 weeks, 6 months

PICS is a 13-item survey where each item is scored yes (1) or no (0) for a total range of scores from 0-13. This instrument is designed to examine three relatively distinct factors: (1) doctor facilitation of patient involvement, (2) level of information exchange, and (3) patient participation in decision making. Higher score indicate higher patient/provider communication quality.

Facilitator Feedbackup to 6 months

Qualitative measure to be coded and themed, summarizing barriers to adoption.

Implementation: Weekly Session Attendanceup to 6 weeks

Trial Locations

Locations (2)

YMCA

🇺🇸

Milwaukee, Wisconsin, United States

Grace Fellowship Church

🇺🇸

Milwaukee, Wisconsin, United States

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