Partnering With Autistic Adults to Develop Tools to Improve Primary Healthcare
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 237
- 试验地点
- 1
- 主要终点
- Patient Satisfaction
研究概览
简要总结
The goal of this proposal is to develop and evaluate patient-centered care tools for autistic adults and their primary care providers (PCPs).
详细描述
The goal of this study is to develop and evaluate patient-centered care tools for autistic adults and their primary care providers (PCPs). One tool will allow autistic adults and/or their supporters to provide individualized information to PCPs about how being on the spectrum affects their healthcare and possible strategies to facilitate quality care. Another tool will capitalize on the power of patient narrative to educate PCPs about autism. These tools and other resources will be housed on an interactive website for autistic adults, supporters, and PCPs. The research team will evaluate the feasibility and acceptability of using the new web-based patient-centered care tools with autistic adults and their primary care providers. This study will provide data for a future trial testing the effectiveness of these tools in improving the health of autistic adults by increasing patient-centered care and patient activation.
研究设计
- 研究类型
- Interventional
- 分配方式
- Na
- 干预模型
- Single Group
- 主要目的
- Health Services Research
- 盲法
- None
入排标准
- 年龄范围
- 18 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Medical diagnosis of autism spectrum disorder (including autistic disorder, Asperger's disorder, Childhood Disintegrative Disorder, and pervasive developmental disorder NOS)
- •Understands written or spoken English or has a support person available who understands written or spoken English
- •Has a primary care provider
排除标准
- •Is not a resident of the United States
研究组 & 干预措施
Use of Toolkit
All participants will have access to the toolkit
干预措施: Use of toolkit (Behavioral)
结局指标
主要结局
Patient Satisfaction
时间窗: 1 month after use of toolkit
Autistic participants completed an online survey about their satisfaction with the tool, including if they feel the tool is useful, how they think the tool will affect their healthcare, if and how they plan to use it with providers, and if they would recommend it to others.
次要结局
- Provider Satisfaction(1-2 months after patient uses toolkit)
- Patient Use of Toolkit Components(1 month after use of toolkit)
- Change in Patient Satisfaction With Healthcare(before and 1 month after use of toolkit)
- Change in Patient's Perceived Barriers to Healthcare(Before and 1 month after use of toolkit)
- Change in Patient Healthcare Self-Efficacy(Before and 1 month after use of toolkit)
研究者
Christina M. Nicolaidis
Associate Professor
Oregon Health and Science University