Determining Patterns In Study Experiences of Neuroblastoma Patients
- Conditions
- Neuroblastoma
- Registration Number
- NCT05918432
- Lead Sponsor
- Power Life Sciences Inc.
- Brief Summary
Historically, participation in clinical research is highly skewed towards particular demographic groups of people.
This study will invite several participants to gather a wide range of information on clinical trial experiences for neuroblastoma patients. The aim of the study is to identify the factors that limit the ability of a person to enroll in, as well as complete a clinical trial for treatment of neuroblastoma.
The data collected from this study will help improve future outcomes for all neuroblastoma patients as well as those in under-represented demographic groups.
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- NOT_YET_RECRUITING
- Sex
- All
- Target Recruitment
- 500
- Confirmed diagnosis of neuroblastoma
- Aged ≥ 18 years old and ability to provide written informed consent obtained prior to participation in the study and any related procedures being performed
- Subjects willing and able to comply with the protocol for the duration of the study including undergoing treatment and scheduled visits and examination.
- Women of childbearing potential without a negative pregnancy test; or women who are lactating.
- Any serious and/or unstable pre-existing medical disorders
- Enrolled in another research study
Study & Design
- Study Type
- OBSERVATIONAL
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method Rate of patients who remain in neuroblastoma clinical trial to trial completion 12 months Number of patients who decide to enroll in a neuroblastoma clinical trial 3 months
- Secondary Outcome Measures
Name Time Method
Trial Locations
- Locations (1)
Power Life Sciences
🇺🇸San Francisco, California, United States